And now they’re in
Wednesday August 06th 2014, 10:28 pm
Filed under: Family,Garden,Life,Lupus,Wildlife

We’d bought and potted those two trees in anticipation and hope of this day happening.

They planted my cherry tree today–and since it had recently been repotted by our friends, it had only barely started to grow through to the ground. Theoretically, as an ultradwarf, it shouldn’t get too much taller than this but rather more outward.

Well we’ll see. That’s good soil in that bed. I remember my dad trying to replace a broken six foot Blue Peter rhododendron a painter had fallen onto and having been told, Blue Peters don’t grow six feet!

Mine do, he told them.

I hope to take as good care of my fruit trees as Dad did his rhodos.  Although, having a backhoe in and adding six feet downward of great soil before planting–okay, Dad, you win. (That was when their house in Bethesda, MD was being built when I was three; he asked the builder to dig a little extra along the front for his future flowers.)

The surprise was the Comice: it was a mere bare root on February 14th and already it had a good taproot squeezing through one drainage hole and smaller ones through all the others. (I drilled about 20–the Costco pots had come with none.) They had a good firm grip on the ground below.

The men checked that thing out and knocked on the door for me: would it be okay with me if they cut the pot away? There seemed to be no other choice.

I want a tree, not a pot, yes please.

They made sure that where they’d prepared was where I wanted it. I thought, eh, I might have nudged it six inches thataway but that’s just way too picky–the hole was ready and it was good so it was just right. “Perfect.”

That was when one of them asked me about that sunjacket I always pulled on every time I stepped outside.

“I have lupus,” I said, sure that that would mean nothing to him–most people have no real idea.

“One of my co-workers, his wife has lupus. Sometimes she’s in a wheelchair.”

Ohmygoodness, so he did know–I winced in sympathy. I told him sometimes I’d been in one, too.

I came away hoping that it would give comfort to whoever she was out there to know one could go through whatever she was going through and still get to be older with this disease, and I wished I could introduce her to 92-year-old Rita.

They set part of the taproot in the carved-up pot for me to see. That tree had wanted to grow freely. And now it can. Pears have no rootstock options that dwarf them as much as you could an apple or a stone fruit, so we put it in the one corner where it would not shade the solar and it would not be too close to the house. It can take over there freely in the space we opened up for it. (Dying cypress, gone at last.)

And now that blank expanse of fence on the other side has some green to it, too. I love the long lush leaves of cherries. I pulled up a chair and my knitting and stared at the loveliness and the relief of having a tree in there already. It’s a great start.

Chris came to inspect the job in progress and as we spoke in the yard, movement high above caught my eye and I pointed it out to him: there he was, Coopernicus, right on cue (always the showoff.) I told Chris we’d gotten to see him courting with his mate perched on the silk oak next door through our skylights this past spring. He thought that was so cool.

Some hunting places gone, the new begun already.



Where it all begins
Monday August 04th 2014, 10:18 pm
Filed under: Family,Food,Life,Lupus

Going back to last Thursday, our first full day in Georgia: Anne and Ned offered to take us to see the lookout point above Amicalola (not Multnomah, Marian, it’s that funky hearing, sorry) Falls and then a little further down, the entrance to the beginning of the Appalachian Trail.

Where we both said it had been on our life list to hike the entire Trail. Richard had done a goodly distance on it in his younger days but they would have to cure lupus before I could really get to it.

The stone arch marking the spot was behind the ranger station and gift shop. It had rows of benches to the side for people to rest on right after their very long hike, and on those benches was a group of people maybe twenty-five years younger than us. Tattoos, clothes you would definitely wear out in the woods for roughing it, big boned, strong in opinions and body, one would guess.

And here we were, Richard in his oxford shirt (I don’t think the man knows how to wear a plain tee, it’s always an oxford shirt. Preferably blue. Rebel that I am, I occasionally buy him something radical, like a green one) and I in my trademark longish full skirt to keep the sun at bay and so that I don’t hash things too badly when I take one of my frequent tumbles: could we scream city-slicker tourists any louder? Those men guffawed quietly when we walked up to the stone arch, took pictures, talked about the trail wistfully, briefly, and then turned and left without taking a single step past that arch. (I regret that. One step wouldn’t have killed me.)

They couldn’t have known that we were all trying to let us have the experience without my spending one moment longer in the sun than I absolutely had to. But they were right, it was pretty funny.

On the way home, Ned allowed as how we really needed us some lunch, given the three-hour round trip, and he pulled into a barbecue joint to show us a little local flavor here.

I have memories from age sixteen of discovering Brunswick Stew at a little barbecue joint in southern Florida and there it was on the menu. It wasn’t the same thing–everybody has their own recipe–but it definitely made its own memories for the next chef to live up to. The best food comes from the funkiest places.

And yes, this is what they smoked the pulled pork in that Anne ordered. You’ve found it. The smoking gun.



Pam!
Sunday July 27th 2014, 10:49 pm
Filed under: Friends,Lupus

Our children were little together. And then Pam moved away.

She and her husband and teenage daughter, born since they’d moved away, were here visiting from out of state and we old-timers at church did not know they were coming.

So when Marguerite came into the last meeting a moment late, I quietly motioned with a thumb across my shoulder to make sure she wouldn’t miss Pam-of-all-people sitting next to me.

Look of confusion back at me: Huh?

I leaned back in my seat so she could see. I tell you, that moment of surprised joy in her face, the same one that had been on mine just a few minutes earlier–it was one of those universal moments where the love that is behind it all is suddenly brightly clear.

Pam later was explaining to her daughter that I was the one who’d made her shawl.

And then I was explaining to the daughter that this morning I had felt like I was going to see someone I was going to want to give something to that I’d knit. I’d gone through a few projects and picked out a scarf I liked and hoped whoever it was going to be, if I really was supposed to, would, too. (And I’d told myself to be open to whatever was going to happen; after all, this is precisely why I knit. For joy.)

And so at that she went from grateful but shy and unsure to letting me give her the soft Malabrigo wool scarf. But I had to say to Rich, her dad, that no, sorry, I hadn’t spun and dyed that one. It was hand-dyed, though.

Store-bought yarn. What’s the world coming to. Heh.

Rich told me he’s looking forward to this year’s Christmas card.

I’d better start remembering right now to do them this year.



But you look so well
Wednesday July 23rd 2014, 9:40 pm
Filed under: Food,Lupus

I know how privileged my part of the world is that this is the kind of problem I have to deal with.  You know how you’re supposed to keep it short and sweet? I didn’t, and maybe that’s why I got the response I did. My note to Costco:

Got the robocall (two, actually, one for each of the past two weeks’ worth of boxes, I assume): Listeria in my peaches. Dangerous for the immunocompromised, which I am; I have both systemic lupus and Crohn’s disease, two major autoimmune diseases.

One box had gone bad quickly and we’d tossed most of those peaches and bought a second box. The recycler took the first one away this morning.

So I took the newest one back to the (I named the specific) store. The fruit wasn’t ripe yet so the box was still full. Did a little bit of shopping first while it sat in my car and asked and was told that I had to have the peaches with me and I had to take them to the membership desk.

Okay, I was prepared for that.

So I put my new groceries in my car, grabbed the peaches and went back in. And that’s where it got interesting.

There were four people at the help desk. One was processing returns and that line went all the way to the front door. There was one customer, and then none, for the other three employees to process.

The employee at the door saw me trying to balance the heavy box in one hand since I have to use a cane for balance in the other hand and told me to go straight to the service side of that desk.

Where I was told I had to go back and wait in that long line.

I wasn’t trying to butt in front of everybody else, but I explained to the young woman (new employee? Didn’t recognize her) that I cannot stand still in one place for a long time: my blood pressure falls. If I’m moving around I’m okay (sitting, I’m fine, too, I’ll add here) but just standing in one place there? For the amount of time that would take? That line was not moving. I physically simply could not do it.

She was maybe too young to be able to figure out any workaround and shrugged and turned away and went back to chatting with her colleague. And that was more productive how? If two of those standing around had taken on doing returns and left the third to handle all others that might theoretically come for other problems it would have worked, both for me and for everybody else.

I stayed there a moment, silently pleading come on, guys, the fatigue in my arm getting to me, at which her colleague glanced my way and half-shrugged apologetically but did not help either.

So lots of people continued to stand in that line while three employees continued not to help them because they weren’t processing returns and the hypothetical Service questions were more important than the actual people needing them. And I took my box of peaches that could kill me if I touched them and left with them to try again later.

Except that I had come near closing time because that is when the potential UV exposure that would trigger a lupus flare would not be a problem standing at that membership desk. Coming at a less busy time of day with the bright sunlight streaming in could put me in the hospital.

I’ve been a weekly Costco shopper for years and have spoken highly of you again and again. I like that you treat your employees well.

But they need to treat the customers well too. My experience has been that you certainly do. But these guys blew it.

One other thing? If you have it in your records that I bought two boxes of the recalled peaches from you then your requiring that I prove that I bought those peaches from you by my physically bringing them in (too late on the first box now, folks, and now I know why so many of those peaches went bad so fast), can you see how that might not go over well? Why wouldn’t you simply refund the bills of everyone who bought them?

Thank you for hearing me out. If you are who pressured the fruit packer into doing the voluntary recall and cleaning their lines, thank you for that, too. But please? Could you take a moment to refund my account fer cryin’ out loud? I did everything I could tonight to try to comply. Thank you.

——-

I hit send on this letter. The page I got in response was this:

The following error occurred:

Error:The web templates system was unable to process your request.
——–
(Ed. to add, So, having saved it, I simply posted that letter above.)
(Edited again to add, Their produce guy told me that only people who actually bought the recalled ones got those robocalls. I got two calls. The UPC code on the second, since I could check that one, was a match.)


Well noted
Monday July 21st 2014, 11:19 pm
Filed under: Friends,Life,Lupus

Someone among the empty-nesters and retirees at church decided we all ought to get together and throw ourselves a mid-week pot-luck lunch just because. I didn’t know it was in the works till the invite arrived in the mail.

Hey, any reason to have a good time together is fine by me–I was looking forward to it. Hazelnut torte, anyone?

And then it turned out that one person whom I don’t know well very kindly offered to host it in her gloriously gardened back yard and to cook it all, too. She not only loves to cook, she’s actually a caterer and everything she does is exquisite. No protests about sharing the burden allowed, she was doing this was for fun. And no one would get stuck with vacuuming duty afterwards.

But when I found out the change in venue it meant I had to quietly say to the person who started all this that I wouldn’t be able to make it after all. I’m an indoor cat, shut the door. She was horrified at the exclusion but I said hey, if you don’t live with it you don’t think of it and that’s perfectly okay–it’s actually a compliment, it means they think of me as simply me, not as That Lupus Patient.

Now, I have no idea if anyone else in that group found out anything of that one-on-one conversation or if my situation (which I didn’t mention to anyone else) had anything to do with it. They didn’t say. But Sunday the husband of a third woman in that group tapped me on the shoulder and offered me a beautifully wrapped small gift. As I exclaimed in wonder and looked back at him questioningly–why?!–he simply told me it was from his wife and beat a hasty retreat.

It was a set of note cards that looked like beautiful quilts, so much so that I had to touch the one on top to make sure that it wasn’t actually a tiny one that maybe she had made?  (She’s a quilter.) There was no note, no explanation. I was completely blown away.

And of course I used the first one to write her a thank you note. (And had to put off mailing it a day because I had to ask Richard when he got home from work if he had their address in his phone–“The white house on the corner of X and Y” probably wouldn’t have done it for the post office.)

It’ll get there.

And I strongly feel we should have everyone sign another for our catering friend.



Tabled
Monday July 21st 2014, 12:10 am
Filed under: Friends,Life,Lupus

Tonight I set the treadmill faster and went longer than usual, thinking a thank you towards all of you who prayed or Thought Good Thoughts my way after yesterday’s post.

Yesterday I’d set it to super-slow and still stopped it at two minutes when my blood pressure kept relentlessly dropping rather than picking up along with the pace. Air was feeling like a rare thing. Not comforting. I knew the drill from my tilt table test: down NOW and feet up. Breathe deep.

To explain: a dozen years ago, my lupus was attacking my autonomic nervous system the first and worst time with that test confirming it in the hospital, an alarm sounding, people running. My blood pressure was at 63/21, heart rate 44. They stopped it and pulled my feet in the air.

Today was so very much better. And I got to be super-grateful all over again.

And.

My friend Karen at church had her sons and their wives in town for a family reunion and the cousins were all toddlers having a great time being cute together.

At one point at the end I saw a woman I didn’t know minding two little ones that I instantly pegged as Karen’s, clearly; the younger one in her lap wasn’t having a meltdown but he was definitely edging towards it: traveling, strange places, strange people, three hours of church, waiting for Daddy to stop talking to his old friends over there. Enough for one day! He threw his paper airplane down with all the energy he could crash-land it with.

The mom looked ready for a good dinner, too; I think it was more for her sake that I pulled out a finger puppet and asked her if he might like to have it.

It changed everything. Suddenly she had a friend to talk to. Someone who thought her kids were adorable. Seeing her. With no expectations nor requirements on her.

It was like the balloon had been increasingly under pressure and suddenly it popped and she could breathe. Her delight at that little bit of handknitting and the appreciation in her face made my day and we chatted like old friends catching up while her little boy explored that puppet with her.

And if she’d put her feet up on that couch right there in that hallway I would have cheered her on.



A beautiful summer day
Sunday July 20th 2014, 12:00 am
Filed under: Knitting a Gift,Life,Lupus

Tag-teaming with the lupus today. I was expecting a friend over and I wanted to spruce up a bit.

Wait, wait, not so fast there.

Can I do this. Yes. Alright, then, dishes after breakfast, done.

Can I scrub that. Not without collapsing. Okay, then, that will have to stay imperfect–how do two adults with no little kids around anymore get a floor in need of being swept again two days after the last time? But mopping, not happening. How about this? Okay, then, laundry, mostly done.  I rested and I made progress and at one point I put my feet up and cast on the next Colinette hat.

But rather than feeling growly or worried that things were flaring a little more than I’d like, I found myself mentally giving a brief nod at all the things that weren’t going wrong medically that had before and simply rejoicing at the great gift that it is to be alive. To be able to love. To have been raised by parents who love me, to have been able to turn around and give that to my children in turn, and best of all, to see the payoff in how very well my grandchildren are being parented, with much thanks to Kim’s parents and grandparents too.

Got to see some new pictures today of 15-month-old Hudson helping his cousin out by eating most of Hayes’s birthday cupcake for him. You want all that? Nah, it’s a little much, here, have some. Thanks! Um, wait, that was a lot.

Hayes. A year already! What an intense joy after all those prayers to see him growing and interacting and perfectly fine.

The friend’s day changed such that there was just no way she could make the long drive here and back up clear across San Francisco and beyond after all the traveling she’s been doing. She was so sorry.

I know fatigue. I would have loved to have seen her while she’s back in California, but I totally understood how it was, no problem. I’m just glad we got that close.

And as I knit I anticipated happy faces to come. It’s all good.



Tabletop mining
Sunday July 13th 2014, 11:09 pm
Filed under: Garden,Lupus,Wildlife

This is the before picture from a few days ago. (There were a lot more tomatoes behind those leaves.)

I had the plants in pots on top of a small table. I taped many strips of mylar bird-be-gone tape to hang from the top of it and it seemed a really good idea; the squirrels raided the neighbors’ but left mine alone.

All it was missing last night, though, was the tablecloth to yank on. One good leap and the table tilted hard into the parched ground on the far side and every single pot came crashing down.

Presumably on the critter’s head.

Oops.

With the actual tomatoes all apparently accounted for this morning as far as I could tell, clearly it didn’t get much for all that. Whether the plants will survive the abrupt depotting and smashing, one can only hope. They are definitely hanging loose.

Richard helped me separate and pick up so I could get back out of the sun faster–and he encouraged me, when I gouged myself on some rusty metal with dirt all over my hand, to go look up when my last tetanus shot was.

Scanning down the screen for the magic word… 2004. Oh. On the phone, the clinic told me not to risk a delay, so I went in after church (with mental apologies to them for my coming in on a Sunday. Everybody deserves a day off.)

The nurse was about to give me the shot when her computer beeped at her. She did a doubletake.

The tdap booster on my chart that I’d skimmed right past? 2010. That t was for tetanus. (Oh of course.) Dodged it this time.

We have a hummingbird-friendly people-unfriendly cactus-level-sharp-spined flowering don’t-know-what-it’s-called in our yard.

This evening I clipped a whole lot of those flowers, which are several feet long and spent and well past hummingbird prime, and poked the stems in towards the center of the table to do porcupine duty over my coveted heirlooms. Any raccoon jumping up now is going to get a snoutful.

I wonder how many broken pots we’ll have in the morning.



Baked, good
Saturday July 12th 2014, 11:17 pm
Filed under: Family,Friends,Lupus,Recipes

Had a must-take-it-easy day so I did. A random mention: my friend RobinM said something about cherry clafouti and I didn’t remember quite what that was and went on a hunt for a recipe and can now attest that this one is really good. (Um, and I changed it to half cream. Because someone had to use it up. And I used a lot less lemon zest because it was after the mega-dyeing thing and I was tired.)

But meantime, we loaned our Aquarium guest passes to our friends Phyl and Lee and they came back tonight with almond croissants from that Parker Lusseau bakery we’d tried to go to down there but that had been closed for the Fourth of July. So we finally got to try their famous pastries–they were worth the wait.

They got the last three almond ones so they added a plain, knowing I’d hoped for a bunch of extras for the freezer.

But the best part was having them over and listening to them talking about and showing photos not only of the Aquarium and Tahoe before that (Oh, we always see a bear *shrug* Wait, you *what?* Oh we always seem to camp next to someone who doesn’t follow the rules even with the thousand-dollar fine) but also of the hyperbaric chamber that as divers they had also wanted to go see, given that there was a tour today. Also in Monterey.

It’s for divers with the bends and for those with carbon monoxide poisoning–so you bet we were interested in what that thing looked like. I would have been airlifted to the one at Johns Hopkins years ago but for the fact that the chamber would have killed the baby I was pregnant with.

Phyl’s eyes got big when I mentioned that that’s when we found out there was no ambulance service back then in the town we lived in in New Hampshire, just a volunteer with a Suburu and hope. Gotta keep those taxes down.  At the hospital, they tested our blood levels and then turned to Richard and exclaimed, You DROVE here?!

(Carbon monoxide alarms are a good idea, folks. And the law in California now.)

I said that chamber looked like a tube-shaped ambulance interior: a bed to each side, ready to go. They described how the thing actually works. They could put up to four in there.

Let’s not. Dive safely, guys.

They do.

Phyllis really liked the deep-sea Outer Banks exhibit and I wondered how often she’d seen a view quite like that from the inside.

And a good time was had by all.



This was what we had always come for
Wednesday June 25th 2014, 11:38 pm
Filed under: Friends,Lupus

(Tomato flowers playing chainstitch.)

My lupus group meets in the nearby community hospital.

Except in the summers, when our conference room is always scheduled for something else and they have no room for us. So we go on hiatus.

Only, this year we really didn’t want to, feeling more strongly about it than in the past. So we decided to have a get-together over lunch, picking a place in Los Gatos so it would be easy for Rita to come. I for one hadn’t seen her in years.

She was one of the original members of the group and from the sound of it I might still have been in high school at that point and back then all the information they could find called the disease universally fatal. End of story.

She’s in her 90’s now and chipper as ever–I will definitely take that kind of fatal.

The woman who’d made the reservations, mindful of several hearing impairments in the group, had asked for a quiet room, and Viva gave us the quietest one of any in memory. Near the end I said by way of thanks that yes the new hearing aids are great, but, this was the first time I had heard nearly everything in a restaurant in a group this size (we were seven) since…I thought a moment…probably my 20’s.

Normalcy is such an amazing gift to get to sample.

We all got big helpings.

One woman made it there whom we weren’t sure would be able to; for all her health problems, she’s a primary caregiver herself and for several minutes there she spilled all her grief of what she and her husband were going through.

How they were doing mattered to us. We asked how they’d met, and telling her multi-continent what-were-the-chances story got her laughing and her old self, freed to simply be.

We reminisced too over the people we had loved in that group over the years.

Do you remember the woman whose wake was held at her home , I asked. I found out after years of knowing her that we’d grown up in neighboring towns–who knew. What was her name?

Yes! In Sunnyvale, right?

Yes! And here’s the funny part, I told them. There was a man there at that wake whom I knew I knew, and he knew he knew me, but we both looked at each other and went, You are wayyy out of context. Where do I know you from?

Turns out he was my kids’ math teacher. He lived across the street there. Our late friend (I want to say Carol?) had taken care of his wife when she was dying, and then when Carol died, Rick opened his door the next morning to find–Carol’s cat.

She looked up at him. She stepped over the doorway. She lived here now.

And so he had indeed taken in that sweet cat that had watched these two households taking care of each other and she knew where to find the love.

I had missed enough meetings over the years that I didn’t recognize a few names the others were remembering, people who had moved away, people who had gone on, people who had simply stopped coming. This afternoon, we all found the love all over again all the more intensely and I never wanted to miss a thing again.

Rita, tiny, mostly blind, not quite frail yet if she can help it, was getting into another friend’s car for her ride home. Did we wear you out? I asked her.

Yes! she laughed, and pronounced, And it was worth EVERY. MINUTE.



Lost
Tuesday June 03rd 2014, 10:41 pm
Filed under: Friends,Life,Lupus

Trying not to be too glued to the election returns. The utterly incompetent judge is behind but not by enough. Etc. The few people I really badly wanted to win, it looks like they probably will, and I’ll just have to wait like everybody else to find out the rest.

And in the middle of that came an email from a church member: a seven-year-old child, vanished, this is what she was wearing, and they said what busy public area she’d disappeared suddenly out of with a fervent plea for searchers and prayers.

Every parent knows that heart-stopping brief moment and this was so much more.

It was a quick walk from our house much less via the car (turn the corner and there you are) and who would know the area better?

Seven ten pm. UV would be about 2 out of 16. My safety vs a child’s, no contest. My sweetie had an intense migraine just then and could only offer the best of intentions and prayers but I could go.

But I had promised an errand with Michelle and I stopped a moment to try to reach her and somehow, as she didn’t respond right away, it became a long five minutes later.

Enough, go!, and I stopped to check the computer for any last updates as I headed out the door–

–just as they hit send on the message that she’d been found. Safe and sound.

Our community knows how lucky we are. And that she is.



Batmobiles
Thursday May 29th 2014, 9:24 pm
Filed under: Lupus,Wildlife

Skipped out on Purlescence tonight due to a sore throat–a mild one, but why share. Took it easy today.

Re the free range plum, I’m amazed it’s still there, given that I didn’t have enough clamshells to cover them all. (And that clamshelled one might need same tape for when the raccoons show up.)

Things are coming along.

Oh and: this school of rays photographed by National Geographic is amazingly beautiful. But the background music–I’m debating whether it should be nananananananananananananananana BATMAN!!!

Or Jumping Jacks Flash.



Right there
Monday May 26th 2014, 10:45 pm
Filed under: Lupus,My Garden,Wildlife

The sun was almost gone. I stepped out the door to go water my tomatoes and blueberries.

A young dove was at the edge of the patio maybe six feet from me quietly pecking away below the feeder, but at my movement jumped off and waddled a few steps away in the yard, and then, with a better trajectory to the safety of the skies should it be needed, turned back to see. Feederfiller?

I played the blinking game. Predators are the ones who stare.

It went Oh okay, then, and did a little hop back up onto the patio towards me and resumed eating.

A finch flew in but flinched when I moved–and I heard the metal perch groan softly as the little bird’s weight left it. That has a sound? Who knew? The finch chirped a small scold as it left, and I heard that, too.  I wanted to hear it all.

A chickadee darted in briefly to the suet cage above my head as I continued to hold still, and then I carefully walked in a wide, slow path around the dove so as not to startle it away. Having begun to make friends from the same side of the glass at last, it seemed to me that the next time I might want to pull up a chair at my zero-UV hour with some sunflower seeds in my hand. Maybe, just maybe.

But for now I had to take care of my plants, too, before it got too dark to see that beautiful first blush of red on that plum out there.



Tender mercies
Wednesday May 14th 2014, 9:53 pm
Filed under: Family,Friends,Life,Lupus

My favorite little boys again…

After last month’s lupus meeting there was no way I was going to miss today’s. I wanted to see her, to be there for her. I came with a hat I’d knit in bright navy and royal blues done in two strands of merino and cashmere/mink, with a second hat still on the needles in purples and pinks in a machine washable merino/silk for her to choose from. (I’m dangling those descriptions out there in case she wants me to email her photos or if she’d rather have how they look be a surprise.) I hoped things had gotten easier in her life, but in the meantime, being a knitter, I did for her what I knew how to offer love and support.

Okay, granted, it was 97F today and nobody would even want to think about wearing a warm hat, but the ocean breezes and cool evenings will be back by the end of the week.

Turns out she’d injured her foot and stayed home.

The parking at that hospital is always terrible and our group meets at 12:30–a difficult time to take a long walk across the brightness for the very sun sensitive.

And yet the parking lot is where the hospital chose to throw their staff appreciation barbecue today.  I don’t think someone thought through that they have this nice inner courtyard with doors right there to the blessed air conditioning for people to escape from the record-breaking heat wave, and one can only imagine what it was like for the people manning those grills I saw smoking away.

Oh wait now I get it they didn’t want the walls of the hospital to spontaneously combust. A little distance, a little asphalt. Gotcha.

I circled through the handicapped area. As if. I circled a wider area. Finally, I lucked out as someone pulled out and I put the placard up (so they wouldn’t ticket me if the meeting went over the two-hour limit) and pulled in.

There was an electric cart with a driver watching me as I turned my car off and I mentally apologized to him for getting it before he could as I grabbed my cane and opened my door.

But no:  he was an old retiree volunteering and cruising the parking lot for people who might be stranded by that party and need a lift to the front doors. Really?! He had spotted my placard and stopped. He offered me a ride and suddenly I had a roof between me and the worst of the UV and less time outside than if I’d gotten the very best spot. Sweet.

During the usual how-you-doing part of the meeting, where we’re expected to actually answer that question, I admitted that summer UV is hard: it kicks up my brainstem inflammation and makes it hard to breathe at night. Y’know, the autonomic nervous system thing–not so autonomic. Not, I hastened to add, anything at all like a dozen years ago when it first hit where I didn’t know from night to night whether I would get to wake up in the morning. Only enough to make it a struggle to breathe deep enough to fall asleep, a far better problem to have.

And it didn’t even occur to me till writing that just now that I could have handed that finished blue hat to one of them for safekeeping, just in case. Because I simply took it utterly for granted that there was no need.

Which is so much better of a place to be in. And, but for that question, I’d almost missed seeing it.

Life is good.



Sweet sixteen
Monday May 05th 2014, 11:04 pm
Filed under: Amaryllis,Lupus,My Garden

No stem cells were harmed (nor found) in the making of this picture.

Meantime, Janice  (Rav link) posted on FB that she had started her tomatoes a tad late,  but hey–and now she had way more seedlings than she could use. It seemed a shame to dump all that potential into the compost heap, did anyone want them?

A day later, nobody had taken her up on it so I said sure.

She dropped them by on Saturday, whereupon I learned a new use for the produce clamshells that are too shallow for my fruit trees–what a great idea!

Saturday and Sunday evenings were busy for us but tonight I finally had some no-UV time at home.

Last year I started my own tomatoes from seed, too, and dutifully thinned them down to one per pot but totally picked the wrong individuals: the sorriest one never got above 10″ high no matter how I tried to coax the darn thing. Big Boy my foot.

And that is why I bought Costco tomato plants a month ago and got them in the ground with bird netting rather than planning on hauling pots inside away from the squirrels once they set fruit. You need the outside heat for sweetness anyway. I wanted real homegrown tomatoes at last!

Tonight with easily 50 seedlings wanting to grow up, as the sun rapidly faded while I was trying to decide mirror mirror on the wall, who’s the biggest plant of all, I hedged my bets and put two per pot in some of the pots. We’ll see how that goes as they grow and show themselves and I get more ruthless, but still: I filled sixteen pots. With two more seedlings plunked in the ground behind the Costco ones that have already set fruit (good luck, guys) because, well, the more the merrier.

Let me grow these up just a bit and then, or now if you want, if you’re local and you’d like an heirloom tomato plant let me know. Seems I have a few extra.