Dr Who?
Monday August 19th 2019, 10:15 pm
Filed under: Life,Lupus

The phone rang seconds before I’d have been out the door to Andy’s Orchard and blew up my plans for celebrating having gotten the mammogram over with this morning.

A strange male voice barked, “Your appointment with Dr. H next week is cancelled!” He sounded almost–I dunno, accusatory?

“Oh okay” (me, wondering, Are you for real?)

“Do you want to come in at 1:00!”

Me, ever so mildly: “It’s 1:08.”

He backpedaled hard. “How fast can you get here.”

And suddenly I’m on for 2:00, with mixed emotions. Fun. Save me the last Kit Donnell peaches, Andy? If there still are any? I gave the last of mine to that potluck yesterday, where they were raved over.

When I showed up, there was a young man at the desk who, when I told him my name, got this terribly sheepish look and then relaxed and laughed a little because I did so he’s okay, really, it’s alright.

And so I went in for my annual no-current-cardiac-problems checkup.

The doctor, who is my age, explained the cancellation in the sparsest of words and strongest emotions: his mom… He had to go see her…

I told him, My dad, too–we answer every call now.

I described my reaction to that new carpeting at church: how it felt much more like when my blood pressure was tanking hard years ago, before he got that under control. But maybe it was just asthma?

Sounded more like the latter to him. But (and I’m writing it here so that I can find it later) he added after a moment’s thought: probably there wasn’t, but if there was any amyl nitrate in that installation it could mimic the chemically similar nitroglycerin.

Holy cow. I’d been given that one single time in the hospital and my reaction to it had triggered the alarms and sent people running to my room–yeah that was a fun day.

Or maybe I just needed to use the inhaler last Sunday. I did.

Did it work?

Who knows, yes?, but I was out of there.

But you know what? It just felt like a relief to know that whatever it is, he knows about it. It’s not all on me anymore.

And he knows I know about his mom now and that my heart goes with him and his family on their long flight home.



I finally asked
Sunday August 11th 2019, 11:01 pm
Filed under: Food,Friends,Life,Lupus

Item 1. They replaced the carpeting at church last week. People were complaining about the smell. It was intense. (I did a mental grin upwards at the late Ski, who’d ordered the previous one ~25 years ago, thinking, at last they’d corrected his color choice. He was so proud of that mismatching green. Shhh.)

I spent much of the time holding very still with not one oxygen molecule to spare. Yow.

This week I was hoping the place would be aired out far better by now–but the answer was, um, some.

I got the doors propped open with a flower pot on one side and a chair on the other before the meeting, but during it found myself having to put my head between my knees. Hey I did better than this last week, what’s up with this. I made a break for it and went for that chair. Yes it was near noon on a summer day and in the sun, but you worry about paying for it re the lupus tomorrow after you make it through today–can’t get to the one without the other.

Jenni saw me and immediately followed me out and stayed by me and asked if I was okay. I searched through my purse I should have used last week but before that hadn’t had to use in years, even if I’ve periodically replaced it at expiration.

I found my inhaler. It helped. Not as much as I wanted, but it helped.

Item 2. I had to go back in to the one of the less aired-out parts to retrieve the Trader Joe’s chocolate goodies from the mother’s nursing lounge at the end.

A young mom was in there: Oh, are you the one that brings those? Thank you so much!

Me: Yes, it is the most fun job–and I take requests.

Her: You always bring my favorites!

I left with a big grin on my face.

Item 3. The upshot: the realization that there was no excuse not to ask. I needed to send out a message to both wards that use that building to make sure there are no serious peanut allergies in either one before I bring TJ’s chocolate peanut butter cups in there. Whether I ever know about it or not, I do not want to leave some poor kid fighting to breathe.

I’ve only brought them a few times but I never should have without making sure first. Checking with the leaders like I did was not enough.

So now I’ve asked.



And thanks for all the cheese
Saturday June 29th 2019, 10:31 pm
Filed under: Food,Friends,Life,Lupus

Steve, owner of The Milk Pail, was offering raclette and other goodies and throwing a small impromptu party today at his much-loved shop, which closes forever tomorrow. There was the big bash with a band already, but he just wasn’t done saying goodbye to all the faces and stories he’d known for so many years, this place he’d put his life into.

Which meant these were hours when I knew he was going to be there.

I put on the sunblock and headed out. His wife and his daughters, too: they were all there.

And I only had the one. All this time I’ve been baby blanket knitting, ~90 hours’ worth of work so far, and I wanted to have four made. But I’m a do-one-project-till-it’s-done knitter, aside from the purse-friendly carry-arounds. Which this was, so at least my good intentions got that far: one would do when one was what I had.

And so, in memory of all that he’s given the community–Milk Pail has been an institution for 45 years–and of the good fight we fought together at City Hall, and most of all for the gift of his friendship and great example of how to be a truly decent human being, I gave him a handknit hat.

They loved it, all of them, because his happiness was theirs and I loved them for it.

Who now is going to put up a big sign in their grocery store saying this is their personal cost of a 25 pound bag of oats and if you put it on your bill, they will then deliver it to the local soup kitchen? Who is going to throw community cheese parties and melt that raclette right out of its rind onto your waiting bread? Where else can you order Thai Curry Cheddar (or even find out that it’s a thing?)

I could not let him retire without a bit of my knitting, I just couldn’t.



Loud restaurant
Wednesday June 12th 2019, 10:22 pm
Filed under: Food,Friends,Life,Lupus

How I managed to polish off nearly my entire big piece of whipped-cream-and-berry-stuffed birthday cake afterwards. (Happy 80th, Mary!)

It was the day of the annual lupus-group lunch before we close shop for the summer. We’ve gone to the same place three years now by mutual agreement.

And…the menu was the same as those last two times, pretty much. Those six lunch entrees. Everybody loves them but man, doesn’t the chef get bored?

I have this weird low-fiber diet as an ileostomy patient and have learned at the cost of a five-day intubation that I must not eat certain foods.

So.

Yeah their hamburger is the best I’ve ever had but c’mon. So I ordered an appetizer that was safe and asked what the soup of the day was. (Soup being cooked. Cooking breaks down fiber.) Beef? Sounds good, thanks, that, too.

The waiter left and I went, Wait. Did he say…  …Beet?

No, the others reassured me, He said beef.

It didn’t occur to any of us that there was a third possibility. Oops.

I have never had such a good cake with so many calories with so little guilt. Celebrated Mary next to me with gusto. We did it right.



93 tomorrow sounds downright balmy
Monday June 10th 2019, 10:42 pm
Filed under: Life,Lupus

102, 104, 106–It all depended on which thermometer or weather report you were paying attention to. But it was hot.

And as I sat quietly knitting I thought, the Enron scandal with the corrupt contracts and the rolling blackouts–those are long over with. (Part of me thought, But don’t they still do rolling blackouts down south?) Yay for air conditioning.  Lupus patients don’t do well in high heat, but then, who does, right.

I got up to nuke myself a quick late lunch and grab a glass of milk and, coming back in the room–the computer screen in that amount of time had gone black.

Nothing could bring it back up.

Something finally clued me in that even though I’d just used the microwave, wait, oh good, it’s not the computer–nothing else is on, either.

The worker next door stopped hammering and whatever and a few minutes later knocked to ask: Was my power out, too?

Oh yes. I offered him our battery drill if his was running out of juice; he laughed, thanked me, and a few minutes later called it a day and drove off.

I unplugged the bought-on-Saturday microwave since it didn’t have a surge protector and thought, well? Let’s see how many more rows I can get done on this afghan before having over two pounds of wool heaped up in my lap makes me cry uncle, and then I’ll just have to find somewhere to go. (The answer was four.)

My phone showed the blackout area: it looked like the whole town at varying levels of intensity, and the next one over, and up this way well into the hills. Wow, it’s a big one.

I went to the Target in the next city going the other way. Where they were keeping it just cooled enough. I wanted to go to Trader Joe’s and stand in the refrigerator aisle, but then I’d buy something cold and have no way to put it away.

I wasn’t the only one who got to the checkout and went, nah, there’s gotta be something else to look at. I do NOT want to go out there yet.

I finally got up the courage to say to the two moms with kids who did that too that I had that map, that I’d just refreshed the page and it’s still happening and here’s where it goes to; was it affecting them, too?

It was indeed, and they were glad to at least know.

So I had the laundry detergent and I won’t have to buy padded shipping bags for awhile but Target can only be interesting for so long. No I did not need a $16 gadget for making individual ice cream waffle bowls one by one while the grandkids wait and wish the next one were theirs.

They only had the display model anyway. Sorry, kids. But I bet all the retailers made great sales today–the ones that were able to stay open.

I checked out. I checked that page. It was what it was.

But since I didn’t want it to be, I checked it again when I pulled into my driveway. This time the lines drawn around the areas were the same but the colors of them faded out and…

…were gone.

I walked through my front door to the sound of the beautiful, beautiful air conditioner completely throwing itself into its life’s work.



Shoo, out, at the okay Corelle
Saturday May 04th 2019, 10:31 pm
Filed under: Family,Life,Lupus

Buy Corelle, the physical therapist told me at the time: it’s lighter on your hands and helps with the arthritis. Which was severe at the onset of my lupus 29 years ago, to the point that I was having to eat with plastic utensils.

I have my favorite Mel and Kris stoneware collected over twenty+ years and mostly use that, but my kids remember the Corelle plates and bowls as part of their growing up. I have broken many of them and don’t replace them because there’s no longer the need.

I have not broken a single stoneware plate.

Basically, I use the Corelle as covers over things in the microwave and as an easily-cleaned coaster while stirring my morning cocoa and that’s pretty much it.

Hands. They must be protected. You never know, they decided. So when my husband and his siblings needed somewhere for their folks’ Corelle to go, it ended up here.

We tackled that box today. I marveled that every piece was perfect, not the slightest chip anywhere–unlike mine, which have seen better days even though I’m very careful not to let the edges touch anything else in the dishwasher.

I had a moment of, how on earth could that be, and then realized that my late mother-in-law could not have abided setting a plate with a chip at her table and she definitely could have afforded to replace any.

There were so many pieces that if I added them to mine that middle shelf would probably break.

And so the old chipped faded ivy pattern which I prefer got booted out today in favor of plain no-frills white. Which is thinner, too. Curious.

There is one, count’em one single plate with an old-fashioned blue scallop/snowflake that probably dates to the ’60’s; I figure I’ll give away a chocolate torte on it and hope it doesn’t come back.

Then I pulled out my pretty, substantial, memories-of-friends hand thrown stoneware and set the table for dinner.



Each day a blessing
Sunday April 14th 2019, 10:22 pm
Filed under: Amaryllis,Family,Life,Lupus

My niece Emily has been in the ICU: she caught the flu, got worse, started barfing and her (tween? Tell me he’s not a teenager yet?) son called my sister and said, Grammy, Mom needs you.

My sister went over and called an ambulance.

Emily’s kidneys had shut down and things were very very bad.

This afternoon she was moved out of the ICU, where she’s been the past week.

Today she ate solid food for the first time. Some.

She feels–well, she’s definitely had more fun than this.

Everything. Everything. Is looking far better than it did. We can start to breathe again.

Today Mom and Dad told us Dad’s in hospice care now. Dad’s favorite caretaker can still come and that made the decision easy.

This is another of the amaryllises from Dad last fall where the TSA thought the bulb was a bomb.

This is not how I usually photograph them and I wondered why I was doing it this way as I snapped another from the same angle rather than changing it. Why… And then I got out of the sun and put it back on the porch and that was that.

I did not see till I went to post the picture: it was taken looking straight down so that the stem that supports the blossoms is out of direct sight–but you can infer where it held the sunlight within itself by how it left only its shadow to our eyes. But it is real, it is there, it is strong against the winds outside, and there where it cannot directly be seen, it holds the glorious colorwork steady.



Oooh, seconds?
Wednesday February 13th 2019, 10:25 pm
Filed under: Food,Friends,Lupus

Went to my lupus group and offered a bar of my chocolate around the room, fresh from my melanger, I told them. Everybody but the person who can’t eat the stuff broke off a square politely.

We had our meeting, and at a comment at the end someone caught on: Wait. Did you MAKE this??! And suddenly that ziplock was in high demand as it went back around the room.

Photo taken afterwards, coming off the hospital grounds during a break between two waves of the storm.

I’m afraid that tree is just too tall to play jump rope with that rainbow.



Shedding
Wednesday January 23rd 2019, 11:52 pm
Filed under: Family,Friends,Life,Lupus

I didn’t think I could do that.

Somebody had to do that, and he of the formerly broken back has a hard time bending. I told myself that having raised four kids, I knew how to be the mom when I had to be and to go just get it done. Time was running short.

Well, good thing it’s January and not June, UV-wise, and at 4:00 I started in on clearing out the shed that the redwood tree had been trying to grow through. Turns out the neighbor’s trees had punctured the roof at the back and there was a great accumulation of needles and twigs and downright compost growing behind our yard stuff that we hadn’t used in ages.

Good thing that broken elbow’s had a month’s healing at this point. The push broom was beyond me but I could scoop stuff up and bin it. Go figure.

Do you know how much an ailing towering redwood can do?

Well let me tell you a story, and maybe I have before, but, my friend Kevin once told me of growing up in Humboldt County and climbing redwoods for fun as a kid. At twelve and a little too adventurous he found himself higher up than he had any business being and while assessing his situation–he lost his grip and he fell.

While I sat there bug-eyed at the telling, fully aware that he had done this and he was here to tell me he had.

“So this is how I die,” was his instant thought, a surprisingly calm thought, and he spread his arms wide as he went down down down.

And suddenly bounced hard and found himself upright, staggering a few steps forward from the momentum.

There had been a barbed-wire fence laid out there about a hundred years earlier, it turned out. He hadn’t seen it. He hadn’t known it was there. It had had so many years of redwood needles and redwood dust raining peacefully down on it that it had been totally obscured and he had landed with his back immediately lined up to that wiring and it had gone sproing. The barbs had bitten him but basically he was fine.

I was agog. “How did Darwin MISS you?!!!” Probably not the most polite blurt I’ve ever blurted, but he laughed, agreeing with me.

So. No idea how many years our shed was open to the above, but clearly, redwoods shed like Samoyeds in spring. And this one had had a lot of brown, falling needles for some time.

I did it.

Tomorrow morning the guy comes to give a quote on taking out the enormous stump. Whether he’s going to try to do anything where the roots raised our concrete floor a foot in that shed, whether he’ll tell me we have to jackhammer it all out of his way first, whether he’ll walk away from that part, I don’t know, but either way I had to be ready for him to see it.



Do not open before Christmas
Friday December 07th 2018, 10:11 pm
Filed under: Amaryllis,Family,Lupus

My dad sent us home from our visit last month with my suitcase stuffed with six really big amaryllis bulbs. (Pro tip: the TSA machine reads those as bombs.)

What they needed was fresh soil and big heavy pots to keep the future multiple sun-tracking stalks from knocking them over sideways. Hopefully. Which is fine, except that I just wasn’t looking forward to that trip down the freeway, much though I like supporting Yamagami’s. It’s a great nursery with a lot of pre-Silicon Valley history to it.

And part of that foot-dragging was UV-sensitive hours vs our rush hour that starts just after 2:00; December is safer lupus-wise for walking around outdoors than November.

Meantime, in the nice warm house two of them started to sprout a few days ago so I cut holes in their bags and turned them over to un-tilt their sense of direction.

Found a third one starting to sprout this morning. The middle one. It did all that in under 24 hours. Okay, that’s it, time to get going, yay for December, and Yamagami’s once again impressed me with what good people they hire.

Opening the fourth bag, I’d had no idea that bulb in the foreground had even come out of dormancy.

You can tell.

Oops.

Dark red, wine, white, pink/red/white, with the bags tucked under each for now so I can remember which is which.

Thank you, Dad! Can’t wait! Now that they’re finally planted the little kid in me is like, so BLOOM now! C’mon guys, hurry up!

 



Stalk it to me stalk it to me stalk it to me stalk it to me
Monday September 10th 2018, 10:45 pm
Filed under: Life,Lupus,Mango tree

There was no prior notice. I was not yet fit for company at that hour but at least I was dressed for the unexpected door knock. Richard was just getting up.

The guy showed me his badge, which matched his clothes: he worked for the city. (I was thinking, oh, I guess it is after eight now.) Could he…gesturing to the back yard and saying a whole bunch of stuff that, whatever it was, I just had no idea. He’d caught me with my hair still wet. When your electronics run nearly nine grand and you don’t want to short them out, that detail matters.

I can’t hear you yet. I’ll get my ears and be right back. (So much for worrying about that.)

A minute later as I came back to the door, there was no sign of the guy. I looked around the side yard, I looked down the street. What had all that been about?

Just then he came around from way around the other side where he’d been assessing the camphor tree that I’d almost paid Chris’s crew to trim back last week, but hadn’t because it wasn’t over the house and we were already at a grand on what had to be done.

It is a perching tree only for the birds; no nest could be hidden in those leaves.

The city wanted to trim it–it was growing into the power lines.

(And afternoon-shading my mango, sweet cherry, and two of my peach trees this year as it’s gotten bigger.)

Coooool. That sure worked out!

The guy was a little surprised at how complete the change was in my being able to follow him. He pointed to his ear and said he wears hearing aids, too, but even looking, I didn’t see them. Some of the ones for people with less loss are really small.

Good for him. More people should.

Several hours later, after getting done with the tree across the street, he and his crew walked past the door and disappeared again around the back. Well hello.

They would be back either Tuesday or Wednesday for it.

I went outside to water my trees this evening when the sun was low enough–and saw those acanthus stalks. The ones around the camphor had been stomped down to the ground, and rightly so. Nobody should have to work through those. As flowers, they feed the hummingbirds and bees, but as dried-up husks they are, as I’ve mentioned occasionally, vicious porcupines that I use to keep critters out of my fruit. My fruit’s pretty much done, though, the figs under netting excepted. I’d been putting off dealing with them because it doesn’t matter how careful you are, you’re going to get splinters hand and foot. And there are a lot of them.

I skipped watering the trees that were around where those guys would be working–you don’t want them slipping in mud and landing on any fallen stalk parts I might have missed under the leaves. Those still upright were four to seven feet high and quite obvious. Thankfully the bottoms of the stalks tend to be smooth for just enough space to leave you a part you can grab.

There were well over a hundred of them, easily.

How the prickers got in past my shoes to stab me in so many places I don’t know, I thought I was being careful.

I looked at my big yard-waste bin stuffed as high as it would go. There were two piles more to either end of the yard for what didn’t fit in yet, but they would be well out of the mens’ way. The bin gets emptied Wednesday and then those others can go in.

I get to handle them twice. Oh goody.

But there is a huge amount of satisfaction in knowing that those workers are going to show up expecting to deal with the worst and they’ll find that someone thought of them and how it would be to take one wrong step and get stabbed through their clothes top to bottom and took care of the problem so that they could have a better day.

They’re certainly going to be improving mine. More sun for my evergreen mango this winter. A better chance for the fruit to actually ripen.

Bring on the chainsaws.



The fouls of the air
Monday August 20th 2018, 10:18 pm
Filed under: Food,Garden,Lupus,Wildlife

The bright white birdnetting over the little fig tree was rocking it out as if Aretha Franklin herself were the soundtrack. There was no way to see what was underneath from there.

2:00 pm, whose health matters, the lupus patient’s or the critter’s?

Yeah you know what I did. Grabbed the hat. Maybe all that smoke in the air will deflect the UV.

It was a mockingbird, caught between the layers of netting–I’d added backup after the scrub jay had done this. How on earth did it get *in* there?!

I opened one side, but of course it wasn’t going to come near me. I went to open the other side and the first fell back down to the ground. The bird snagged a wing exactly where the jay had; I considered the size of its beak and the fervor of its fear while reaching to pull the stuff away from it but that was enough to motivate it to extricate–and it resnagged over to the right, over by the bird spikes (supposedly) protecting a fig.

It was screeching fowl language at the top of its lungs all the while.

Then suddenly all was still and silent as I peered through the reflective white coating–where did it go? How did it get out? When did it get out? The answer was, it didn’t, and suddenly we were in round two.

After several minutes of this it found that one good spot I’d had waiting for it and escaped.

So what I wonder now is, is it dumb enough to try that again? Go eat a cherry tomato, fer cryin’ out loud.

I weighed down the bottom of the netting with flowerpots.

I found myself unable to just sit and knit after that and checked out the bathroom window at the far end of the house (the only one you can see the tree from at that funky angle) again and again to make sure that was that.

So far, as far as I can tell, so good.

All I want is a half dozen palm-size fully ripe Black Jack figs picked first thing in the morning for full flavor, filled with a little Brie and roasted. Or straight off the tree: fig tartare.

If you see any at your Costco let me know.



Calla called, cowl could
Saturday August 18th 2018, 10:12 pm
Filed under: Friends,Garden,Lupus

Afton (should I say Other Afton, or Local Afton) told me last week she’s about to move to Denver.

Denver is going to be awfully cold to a Californian. So I made it to Green Planet on Thursday (while I could still buy this yarn), started Friday night, got right back to it first thing in the morning and by this afternoon had two skeins of Chalet in this cowl and called it done. (It was densely knit, too, before water touched it, but I still think it’ll give her some good warmth. The photo is less than half of it.)

Ran to Trader Joe’s this evening, where they had small pots of flowering plants out front; I did a quick visual skim so I could keep going and ignore them–but that darkest-pink-to-purple calla lily jumped up and down and refused to let me not pay attention to it.

Wait. That’s IT!

I’d been looking for it for a long time without quite knowing what I was looking for–and with my sun sensitivity, it’s hard to go browsing at nurseries.

I’ve had a large chestnut-brown ceramic pot near the front door ever since my friend Sheryl gave me several when she moved. Two have long been used. The third was very heavy, and when we found it had a crack in it it seemed like an announcement of, well that’s where that goes, then, and it’s a good thing that’s a good spot because even empty it was too heavy to safely move it again and it was far too nice to just toss it because of that.

I just never came across anything that felt like the right thing to put in it. It seemed kind of dumb to have this big empty gorgeous pot just sitting there, and it was, but if I was going to put the effort into keeping anything alive it needed to be something that constantly drew me to it.

It was pretty dark by the time I dragged the bag of soil from the back yard and got this all tucked away in its rightful new place, where it will bloom and the bulb will spread out to fill the space for years to come.

I’d been waiting for it for a long time.

 

 



Paul Kalanithi. And Jason.
Thursday August 09th 2018, 10:39 pm
Filed under: Crohn's flare,Friends,Life,Lupus

A book or the baby blanket project…

“When Breath Becomes Air” won. Written by Paul Kalanithi, whom I first stumbled across in a New York Times article. He trained as a neurosurgeon at Stanford alongside our friend Jason, which I knew was going to make the book feel very personal. I watched Jason’s family go through that hard long slog; when Jason’s training was finally over, he took a job in upstate New York and his wife Sheryl, who loved to garden and did what she could while living in a rental here, gifted me with several large flower pots when they left. I have raspberries in one and a squirrel-surprise fig seedling in another to remember them by.

When Kalanithi wrote of going out with his wife to a great barbecue place, I thought, I just bet you that was Armadillo Willy’s. California does not do barbecue like the South does but that’s the one place I know of that tries.

Kalanithi wrote about what it’s like to be diagnosed with stage four lung cancer at 36 when you’re so close to achieving all that you’d hoped and worked towards but then life flips the tables over and everything spills off.

I remember Jason coming into church once, which was always notable because during those residency years he so often couldn’t take the time off to. He looked down, and it could have been just the endless hours of it all–and yet.

So I asked him.

And he, knowing that I knew the inside of Stanford Hospital well, just spilled: he’d had a patient, a lovely woman, cheerful, happy, healthy all her life, (and it was clear he really admired her and loved her) and all the sudden there she was needing brain surgery and bam just like that despite all his training, despite all his years of preparation to be able to help other people in moments like this, there was suddenly no more they could do and to his great surprise she was gone. Gone. How. It had just happened and he hadn’t had time to process it yet. He wasn’t sure right then that he could process it–it just didn’t compute. Sixty years old–so young.

Looking at this love of a human being himself, my reaction surprised him. I was in my early fifties, so an endpoint that seemed so close to him in his thirties was a lot closer to me. But still, I was going, Sixty. She made it to sixty in good health. How would it be! I marveled rather than ached, and told him, That’s really cool, I’m so happy for her. I’m sorry she’s gone but I’m glad she had such a good life!

I was picturing all the things one could do if, say, one could be a normal person who could be out in the sun. No lupus. No Crohn’s. You could travel. You could go to the beach and not just right at sundown. You could play with your grandkids on the grass at noon, you could celebrate in any way and at any time you wanted and the fact that she was such a good person while living that life… And then blink and it’s over and you don’t even have to do much of the suffering part in between.

To have that reaction out of someone so close to his patient’s age–that was exactly what Jason had needed. The gratitude. And towards him, too, for having been there for her when she’d so needed him. It turned it around for him completely. He had done his best and he had been there for her and what he could do and be had been enough.

I think both of us will never forget that moment.

Today, at long last, I read his friend Paul’s posthumously published, beautiful, heartbreaking book, a love letter to the daughter he would never get to see grow up, and wished Jason and Sheryl were still here to talk about it with. About their friend.

But life changes and people move on.

This I know: we will see each other again.



Hold on tight
Friday July 20th 2018, 9:45 pm
Filed under: Life,Lupus

I had been thinking about what the shoe repair guy had said and found myself agreeing that just making that bag pretty was the way to start; maybe that would prove to be enough for me.

He had been thinking about what I had said and what that beautiful piece deserved to become again and more and he was all ready to work out the design with me and get going on the challenge, and seemed a little disappointed when I agreed with what he’d said yesterday. Clean and dye to start.

Holding it in his hands now, he admired the quality of the leather, feeling it as a knitter would a good yarn and then looking up into my eyes, appreciating what this was. This one was worth the effort.

Later, long dreaded but for the first time ever, I managed to lock myself out of my house because the keys had slipped out of the smaller older purse I’d switched my stuff to; I was taking my knitting out because that cone halfway out the top meant it just did not fit in there. At all.

I did not hear them fall onto the carpet. I usually obsessively check that I have them before stepping out the door but I’d made Richard wait while I got the Instant Pot loaded for dinner and I was distracted and in a hurry and realized too late.

This locked me out of both the house and the car and stranded me in the sunshine. Thankfully at six pm, when the UV was nearly–but not all–gone, or I would have been so brazen as to knock on the neighbors’ doors and begged for help. Sunshine can kill, and that is so weird, but they know me and they understand.

Instead I sat on the bench under the lacewood elm’s deep shade and read the Time magazine I’d grabbed to make up for the lack of knitting. At least I had my cellphone so I could clue him in. He found a ride home.

A zippered pocket where no keys can fall out, rather than only having that broken plastic half-sleeve that holds nothing and a magnet-snap top that things can fall out of….

You see where this is going, right?