Purple cowl a fragilistic expedite all options
Monday January 29th 2024, 10:25 pm
Filed under: Knit,Life,Lupus

I got hours of portable knitting in, but it was nonstop with no way to so much as walk out of the room for a break, with a fine, slippery cashmere/silk on very slick needles that the stitches kept wanting to leap off of. My hands needed to stop after that.

Not that I’m complaining. It’s good to see that 2019 Stitches West skein finally starting to live up to its endless sweet-talking promises.

Today was, at long last, the day for the retina surgeon.

He was thorough, he took his time, he asked for questions, he gave plenty of info so that I could begin to figure out what to even ask, he came highly recommended by other eye doctors, and I came away feeling like they were right–I’m in great hands here.

Did the lupus have anything to do with this?

Maaaaaaybeeee? he answered. We really don’t know enough yet. But, (scrolling through past meds) are you still on Humira? That’s a great anti-inflammatory, it could help with this.

No, that stopped working. ’09, colon’s gone, I’m off it.

Had I ever had iritis?

Yes, probably 30 years now, and narrowed optic nerves (we both knew that means autoimmunity at the eyes) but they had no baseline at the time.

Did I need surgery?

Yes. He could set it up right now. It won’t be like cataracts, where you go in with impaired vision and walk out marveling, I can see! It will be a gradual improvement over time, but improve it will.

But mine was not an emergency. Yet. He wanted to know how I was doing with it.

Well, I said, I have this small pill I have to split every day; it has a cut line down the center. I can see it fine with my left eye; I am totally blind to it with my right, with the pill itself fuzzed out. Reading has gotten hard (although I still do a lot of it) and I find myself holding things to the left side, which was always my bad eye. But the brain compensates and I wouldn’t even have known there was a loss of the center of vision if I didn’t shut the left, just that fine/small things seem difficult. Lines of text wobble in height and intensity.

I didn’t say, And it’s been a strong motivation to knit everything! Right now! Don’t wait!

He compared November’s screening at the optometrist’s to today’s. He could schedule it or he could give it a wait-and-see for two or three months to see how it goes.

I asked him, If it were your eye what would you do?

He considered that a moment. The latter.

Reassurance and a plan felt great. April, then, for a re-check and a decision then, and most likely we’ll schedule it then.

The receptionist, trying to warn me about the time involved with such screenings, told me, Set aside three to four hours for it.

Yeah. (I almost held up my project.) I know.

I’ll bring an easier wool and needles for flying a bit blind with those eye drops.


4 Comments so far
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How wonderful to have such a good doctor! It’s a huge relief to be in good hands.

Comment by ccr in MA 01.30.24 @ 7:44 am

It’s feels really good to believe you’ve got the right doctor.
With anything, but especially with eyes.

Comment by Chris+S+in+Canada 01.30.24 @ 8:04 am

Sorry for the vision loss, but sounds like you’ve got a great doctor to help. And that is a big plus.

Comment by DebbieR 01.30.24 @ 7:06 pm

Sounds like again you are dealing with a very good medical specialist. So important to get thoughtful advice.
Glad to hear you are not an emergency, but it sounds serious yes.
take care

Comment by Lisa R-R 01.31.24 @ 5:57 pm



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