Where there should never be corporate cost-cutting
Friday November 11th 2022, 10:47 pm
Filed under: Crohn's flare

If I’ve sounded at all antsy of late…

I’ve gone several years at a time without it happening, and when it did it was always at night, almost always after I’d eaten not only a late dinner but one that I knew was a risk. You’re at a restaurant celebrating a friend’s dinner? Just enjoy the friends and food and if you have to deal with it later you deal with it later.

Middle of the afternoon. Never like that before. And again. And again. And again. And again. Simply ripping open after coming unglued from the top at random. Eight times in, what, 18 days now?

Monday I sat down after the latest and wrote a letter to the manufacturer saying whatever is going on with your product is not acceptable. Fix. It. It is making it impossible for me to so much as leave my house. Insurance only pays for one bag per day and did they have any idea what patients are charged out of pocket for this stuff?

The answer to that being nearly $400 a month for the most humble of bodily functions that the surgeon’s knife took away.

They verified who my supplier is–whether to work through them or to trace a possible source of the problem, I don’t know.

They (which, I’m not sure) have now FedExed me replacements.

One bite, two at most, one swallow of fluid. Every snack, every meal. Digestion by water erosion. No high fiber. I haven’t had a cob of corn in 14 years. No spicy foods that deteriorate the seal.

And then today it happened again anyway.

Maybe I should write the FDA, too.

3 Comments so far
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Oh, how awful! No, that is not a product for them to try to cheap out on. I’m so sorry! Definitely should be reported to someone.

Comment by ccr in MA 11.12.22 @ 5:53 am

It’s “we the people” who pay for corporate greed and lack of government regulation, and our broken medical “system”.

Comment by Jayleen Hatmaker 11.12.22 @ 9:18 am

Oh my goodness. I’m so sorry for all that trouble. Yes, I think you need to notify the FDA, your congress person, anyone that might listen. If it’s happening to you, it’s happening to others who might not know how, or be able, to argue for replacements. I hope the new ones are the good ones.

Comment by DebbieR 11.12.22 @ 10:41 am

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