I knew a woman 30 some years ago who had what we now know as CFS. What she went through for testing and benefit coverage and so on was simply unbelievable.

It takes the right person in the right place at the right time to break through the walls to make a difference.

I really hope they figure out soon whether the test “works” on less-severe cases of CFS/ME – if it doesn’t work on cases that aren’t at the extreme of severe, it may accidentally become a new tool for dismissal of disability insurance cases and such.

(I have a friend with a condition semi-related to CFS/ME who has disability insurance, and they are real jerks; including the insurance doctor who told her that “it didn’t count if she didn’t try” while she was taking a cognitive function test to the best of her ability.)

Try and keep trying! I hope this is the breakthrough they need.

He was also in the documentary “Unrest.” It was just recently on PBS. Very good and heartbreaking.
On another completely different note, since you are always charming us with crazy zillow houses, have you looked at the instagram “Zillow gone wild”? It is quite the rabbit hole, but fun!