The best antidote
Thursday December 15th 2011, 11:38 pm
Filed under: Family,Lupus

My thanks to those who said they had no reaction to Reclast (and yes, that’s what it was); I don’t want to be scaring people.

Mine was fierce: it felt like both my lupus and my Crohn’s went nuts. Shooting pain, joints, shivery fever all night, barfing night and day. It has finally let up just enough that I can sit up long enough to type this. “One of the unlucky ones,” the doctor said to Richard on the phone.

Then he asked if I had hives. No. I really am one of the lucky ones after all; I should be able to take it again, then, and I do need it.

I was reading my messages, glad for the connection to the world outside my room, but was unable all day to sit up to answer them.

One, the best one of all, was from my sister: her granddaughter was born last night, to parents who had been trying to conceive and to carry to term. She’s absolutely beautiful: big wide-open eyes looking back, a full head of dark hair.

Just like my John looked like as a newborn.

We are so blessed.

14 Comments so far
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I got your hives last night (unwise food choice and/or two bad days @ work). Quite happy to take them off your hands, et al. Mild case and nearly gone this morning. You’re welcome 😉

Comment by lynn 12.16.11 @ 2:44 am

Sorry to hear that you’ve been feeling yucky! I hope that you feel better soon. Our December weather is awful. Rain, almost freezing, sooo dark and damp. Right now I wish I was in Palo Alto! (Or in Thailand where my sister lives at the moment. :))

Comment by Monica 12.16.11 @ 5:17 am

Sorry you reacted to the meds. Hope you’re improving rapidly. And hugs to the new baby and family! God bless all!

Comment by Jody 12.16.11 @ 6:39 am

It is such fun when good things come in small packages. No hives is s plus!

Comment by Sherry in Idaho 12.16.11 @ 7:45 am

I’m glad you got your luncheon in first. I know you can survive the disease. Now I’m just hoping you can survive the treatment!

Comment by LauraN 12.16.11 @ 8:35 am

seems like sometimes the treatments feel worse than the illnesses —

prayers being offered on your behalf — consider yourself gently hugged

Comment by Bev 12.16.11 @ 8:48 am

Oh goodness. The cure is worse than the curse sometimes it seems… I’m glad it was relatively short-lived though.

Congrats on the new baby in the family!

Comment by Channon 12.16.11 @ 9:09 am

Let’s see — your sister became a grandmother. That should make you a grand (or is it ‘great’ aunt!).

Glad you are feeling better.

Comment by Don Meyer 12.16.11 @ 10:04 am

Yow. Glad you’re feeling a bit better. Hope that it clears up soon. And a link for you- this story made me smile and then say, “I must tell Alison!”

Comment by RobinH 12.16.11 @ 11:19 am

Oh no! I do hope you are feeling much better today. Take care and focus on Parker and new great niece pictures, sure to make you smile.

Comment by DebbieR 12.16.11 @ 1:46 pm

Oh, so sorry the medication is beating you up. I hope the strength of the side effects is a measure of its efficacy.

Comment by twinsetellen 12.16.11 @ 3:57 pm

I have neither Crohn’s nor lupus, yet I feel your pain – I’ve been sick and barfing all day myself.
Congratulations on your grand niece!

Comment by Sandra 12.16.11 @ 4:07 pm

I’m delighted to hear about the new baby! But so sorry to hear about your reaction to the drugs – please take care of yourself, and know I’m sending feel-better thoughts your way.

Comment by Jocelyn 12.16.11 @ 5:28 pm

Osteoporosis treatments are dicey, aren’t they?

I had a couple of Reclast infusions and did ok, but now that I was switched to Prolia, my own inflammatory issues (severe arthritis, fibromyalgia, etc.) flared something horrible. One of the things my rheumatologist does for the FM is trigger-point cortisone shots, but that kind-of defeats the purpose of the Prolia…

Cure worse than the illness – yup, and what can we do?

I hope you’re feeling better now… I love your patterns!

Comment by teabird 01.07.12 @ 2:27 pm

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