We have specialists on staph
Thursday April 30th 2009, 5:53 pm
Filed under: Crohn's flare,Life

TMI from a tired blogger:

The good part, I suppose, of looking up staphylococcus aureus (yowsers!) is that I’ve become even more obsessive about washing my hands. Rubbing my sleepy eyes after reading that article landed hard in the Thou Shalt Nots.

I went back to dermatology yesterday.   Then called the stoma nurse today: leaking bags waking me up in the middle of the night four times in one week on top of that still-there-staph aureus infection is kinda getting old.   Not to mention expensive–if I use too many in a month, I get to pay for the extras at about $30 retail a shot.

The stoma nurse pulled strings and has a different type of skin barrier being overnighted to me now as samples (bless her!) to try that hopefully won’t give way, and said the weeping skin won’t heal if the adhesive is being pulled off too often–keep it to every other day, no more.

The dermatologist says the skin needs an antibiotic gel applied twice a day in order to heal.

Uh, guys…

Just as I finished typing the above, the phone rang. It was a nurse from my husband’s employer, wanting to see how I’d been doing since February and could she help with anything?

So she is now going to confer with an infectious diseases specialist to see if she can get me any more information.  While I’m sitting here marveling at the out-of-the-blueness and the timing of her call. Wow.

imgp7545Meantime, some knitting is still actually going on over here, slowly but surely, on my new Grafton needles handmade in–I’ve come to really love the place–Vermont.

18 Comments so far
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Sounds like a conference call with your care providers is in order. Geesh….get their act together.

There’s a lot special about Vermont….thanks!

Comment by Joansie 04.30.09 @ 6:35 pm

Hey, enough is enough! I’m sure you are saying the same thing. Thank heaven for these wonderful people who do their best to help you out!

And a shot of humor might help in the healing process:

Somebody has said there are only two kinds of people in the world. There are those who wake up in the morning and say, “Good morning, Lord,” and there are those who wake up in the morning and say, “Good Lord, it’s morning.”
A minister parked his car in a no-parking zone in a large city because he was short of time and couldn’t find a space with a meter. So he put a note under the windshield wiper that read: “I have circled the block 10 times. If I don’t park here, I’ll miss my appointment. Forgive us our trespasses.” When he returned, he found a citation from a police officer along with this note: “I’ve circled this block for 10 years. If I don’t give you a ticket I’ll lose my job. Lead us not into temptation.”

The minister was preoccupied with thoughts of how he was going to ask the congregation to come up with more money than they were expecting for repairs to the  church building. Therefore, he was annoyed to find that the regular organist was sick and a substitute had been brought in at the last minute. The substitute wanted to know what to play. “Here’s a copy of the service,” he said impatiently. “But, you’ll have to think of something to play after I make the announcement about the finances.” During the service, the minister paused and said, “Brothers and Sisters, we are in great difficulty; the roof repairs cost twice as much as we expected and we need $4,000 more. Any of you who can pledge $100 or more, please stand up.” At that moment, the substitute organist played ‘The Star Spangled Banner.’ And that is how the substitute became the regular organist!

A minister waited in line to have his car filled with gas just before a long holiday weekend. The attendant worked quickly, but there were many cars ahead of him. Finally, the attendant motioned him toward a vacant pump. “Reverend,” said the young man, “I’m so sorry about the delay. It seems as if everyone waits until the last minute to get ready for a long trip.” The minister chuckled, “I know what you mean. It’s the same in my business.”

Comment by Don Meyer 04.30.09 @ 6:38 pm

Oh, boy. That’s not a conundrum you should have to deal with right now! I hope all of the calls and help get your some solutions (and healing) quickly 🙂

Comment by Jocelyn 04.30.09 @ 6:44 pm

((((((Hugging You))))))) Darcy

Comment by Darcy 04.30.09 @ 6:46 pm

I am glad that nurse called. My husband’s insurance that covers me too has nurses that do that. I always am suspicious, though…when I have to tell them how I am managing my chronic “issues”…will they pull the plug on me some day because I have become too expensive?

I do hope and pray that your infection clears up soonest and that the other problem gets resolved speedy quick.

Comment by karin 04.30.09 @ 7:01 pm

We both know it really wasn’t out of the Blue :), Heavenly Father is so aware of the problems you are experiencing. I often marvel at all the tender mercies that go un-noticed simply because we are too involved in what ever is overwhelming us at the moment. Note that I am not saying that you have not noticed it, I was speaking of myself not even realizing what tender mercies were until the Spirit opened my eyes and now I see them everyday and they are truely amazing :).

Comment by LDSVenus 04.30.09 @ 7:52 pm

All that sounds like a real pain in the butt. I hope it gets resolved very soon.

My aunt has been in the hospital since Monday. She has staphylococcus pneumonia.

Comment by Sonya 04.30.09 @ 9:04 pm

I just love conflicting “professional” advice, don’t you? Thank God, there are still those folks out there who are “on your side”.

Comment by Ruth 04.30.09 @ 11:23 pm

Oh, for the love of mercy, may the right person help you get past all these complications. That’s my prayer. (I feel like we’re in a giant fishbowl and just need to swim by the right fish!)

Oh, such beauty in the color of that yarn!

And oh, ho ho, those Grafton folks have some very pretty items for sale. I think I could love Vermont, too. Thanks for the link. 🙂

Comment by Toni Smoky-Mountains 05.01.09 @ 4:09 am

I hope everything gets settled quickly for you. The yarn is beautiful.

Comment by Jody M 05.01.09 @ 5:01 am

Hugs to you, Alison. It was lovely seeing you last night, and your knitting on your Grafton needles is gorgeous as usual! I am so hoping to visit Grafton Fibers (among other wonderful establishments) when I go to VT in June.

Comment by (formerly) no-blog-rachel 05.01.09 @ 5:02 am

Beautiful “wad” of lace in progress. I’m glad some angels have come to your rescue. Praying that one of the samples is the answer, and that the insurance will comply…

Comment by Channon 05.01.09 @ 5:57 am

Try as you might, you’ll never top your eyelash story.

Beautiful needles! Wish I hadn’t clicked because now my bamboo dpns seems so second rate.

Comment by LynnM 05.01.09 @ 5:59 am

jeez. I hope they can get you fixed up and sorted out. Almost constant leaking etc is a real pain. Literally.

Comment by Carol 05.01.09 @ 9:38 am

Oh goodness! I’m so sorry I’ve been away, but our new puppy has been ruling my life (and biting my toes). I have been thinking about you though. I think of you often, because your strength is an inspiration. Here you are, going through more strife, but you would never know it from the tone of this post.

I hope that things improve…soon. You are in my prayers.

Comment by Momo Fali 05.01.09 @ 2:00 pm

Speacilists on staph. Groan. Just figured that one out. Very funny. 😉

Comment by Lene 05.01.09 @ 7:45 pm

As someone who is immuno-compromised from chemo, I appreciate your hand-washing vigilence!
I love when serendipity happens — it feels like the Universe is paying attention. Sometimes I think it’s because we are open to see it. Yesterday I was talking with a woman at our dog’s play group (snickers are allowed) about solving a barking problem, to learn that she is my GYN-oncologists’ nurse practioner. The doc’s office is about half an hour north of where I live; the play group (and where she lives) about half an hour south. It was good to be able to talk with someone who understands.
IMHO the right treatment for your staph is way overdue, and I hope that having more heads working on it will bring a solution quickly!

Carol in MA

Comment by Carol Telsey 05.02.09 @ 7:23 am

bi-daily or bi-daily (twice a day or every other day, take your pick) Tell them to speak the same language, fer cryin’ out loud!

Comment by Karen 05.06.09 @ 4:33 pm

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