Needing a miracle
Monday January 26th 2009, 4:16 pm
Filed under: Crohn's flare

I needed two miracles, one small, one big. I got the first one this morning, for which I am infinitely grateful: I was first on the list and got a PCC line (“pick”) nurse installing my PCC line first thing this morning. This means that for the first time in a month, via tube now, I can get full and complete nutrition and my body can recover that way.

The second is much dicier. Tomorrow is the day, after the requisite two week interval, for my second Humira dose. It will be two epipens’ worth; the first dose was four epipens, next those two tomorrow, then I am to have one every other week after that forevermore.

I desperately need tomorrow’s dose to work.  Really work. If it does not, I have to have my colon out and will have a long hard recovery from that, and once you cut into a Crohn’s patient, there are many more surgeries later over the years.

If that Humira takes, I can avoid all of that and be home free.

80 Comments so far
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Everything is a miracle. Miracles happen every day. You aren’t asking for the impossible. Rest and stay hopeful.

Comment by LynnM 01.27.09 @ 12:15 am

I came across your blog via someone elses and have been popping by for the last few weeks to see how you are doing. I have had colitis since I was a teenager and have been suffering quite badly for the last year but your account of your illness has made me realise I am not that badly off at all and I am trying to feel less sorry for myself! I wish you well with your treatment and hope it means you avoid the operation. Sue.

Comment by sue green 01.27.09 @ 3:10 am

Okay, the biggest prayer yet! Like eveyone else that is all I can do but I wish I could do more.

Comment by Vicki 01.27.09 @ 3:19 am

Prayers and positive thoughts being sent to the big Man for you.

Comment by Amanda 01.27.09 @ 4:00 am

Alison, I read something similar to Lisa’s comment in today’s NYTimes science section. Of course, it sounds like you ate plenty of dirt for free as a child playing in nature! Your way was cheaper and more fun. I can’t wait for you to get better to be able to share more of those stories with us.

Comment by LynnM 01.27.09 @ 4:59 am

It will take. That’s all there is to it because I don’t know how to knit a new colon…

Comment by afton 01.27.09 @ 5:20 am

You are forever in the continuous stream of healing thoughts and prayers from me. and yes, as LynnM wrote, miracles happen everyday.

Comment by marianne 01.27.09 @ 5:25 am

Prayers abound.

Comment by Channon 01.27.09 @ 6:13 am

Sending all my prayers and good wishes for tomorrow. May the Lord bless you and keep you safe!

Comment by Sue J. 01.27.09 @ 6:15 am

I didn’t see this before bed last night so am getting it on Tuesday morning — hopefully rounds are over and you will have received your dose.

Count me in. I’m defintitely on the team praying for that miracle to happen.

But I want to state here, in front of witnesses, once and for all, while we are both alert and awake: I am so tremendously glad and honored that I got to meet you in this lifetime, Alison. You have taught me and are continuing to teach me a great number of things about caring, loving, understanding, listening, reaching out, praying, being there…I could go on. And of course I’m glad there’s knitting, too. 🙂

Much, much love, and hugs. Thank you, and thank you to everyone who is taking care of you.

Comment by karin 01.27.09 @ 6:28 am

*soft hugs* and love. Hope things go well today with the Humira. And yay! nutrients! 🙂

Comment by Amy 01.27.09 @ 6:39 am

I didn’t make the blog run last night – East Coast time vs West coast is several hours…..however, I am trusting Humira to be the miracle drug you need that it has been for me. I take a dose every week and it has helped me so much. Prayers have already been said for you this morning. Trusting God to provide the answer.

Comment by Rena 01.27.09 @ 6:40 am

Prayers, hope, and healing vibes coming your way, from me and my knitting friends!


Comment by Pegi 01.27.09 @ 6:56 am

Then we will all be praying for that second miracle.

Comment by Jocelyn 01.27.09 @ 8:16 am

I’ve come to your blog through Natania’s blog. I too suffer from this awful disease. I’m on Humira and have been for the last 10 weeks. I really hope that you see some improvement so that you don’t have to have your colon out. My thoughts and prayers are with you.

Comment by RC 01.27.09 @ 8:27 am

I’m sending love and prayers your way, Alison.

Comment by linda 01.27.09 @ 8:53 am

Thinking good thoughts about the Humira. It HAS to work. We all need it to work for you…

Comment by Sandra 01.27.09 @ 9:14 am

We have your back Alison…just relax and let the drugs and nutrition work…

Comment by Betsy 01.27.09 @ 9:41 am

As LynnM pointed out, your mother let you grow up playing outside, getting filthy, eating dirt, and falling into dirty water. In other words, you mother did everything she could to give you a healthy immune system. You’ve had problems, but now good medical care, plus being raised with exercise, dirt, and love will carry you through!

Comment by Laura 01.27.09 @ 10:20 am

My prayers and well wishes are with you. May the Humira work as needed and you be able to make further progress on your recovery.


Comment by TripletMom 01.27.09 @ 10:44 am

Prayers coming your way.

Comment by Sylvia 01.27.09 @ 10:48 am

I hope the infusion is going mor smoothly this time. (with embarrassed shrug)I get IVIG, and every dose starts with Benadryl and Tylenol to prevent a reaction. You are doing this, right? I hate to think you are using the Epipen before trying simpler, and more comfortable, solutions. OK, I still feel sheepish for being so nosy, but I’m going to leave it in, and shrink off, embarrassed, and think good thoughts for you.

Comment by Kathy Sue 01.27.09 @ 10:53 am

Hugs and virtual hot cocoa — just the way you like it.

Comment by Jocelyn 01.27.09 @ 10:53 am

Still sitting (via the internet) by your side willing you to be well and telling you encouraging stories of my son’s miraculous recovery with Humira.

Comment by Marlene 01.27.09 @ 11:08 am

I wish and hope you make a wonderful recovery very soon.

Comment by Matilda 01.27.09 @ 11:56 am

Alison, my thoughts and prayers are with you and I will be thinking of you tomorrow and in the days to come and willing all the healing in the universe to come and reside in your body. *hugs*

Comment by Sophia 01.27.09 @ 1:13 pm

Adding my, late, words of support in.
And as always thinking healing thoughts for you.

Comment by Mari 01.27.09 @ 5:00 pm

Tell Afton that a colon looks like a long skinny, wrinkly tube…think one of her socks, just smaller around and much longer–and just as colorful! *smirk*

Comment by Karen 01.27.09 @ 5:19 pm

Beaming hugs and best wishes for an optimal outcome!! Glad you’re feeling better!

Comment by Ruby Louise 01.27.09 @ 6:59 pm

Good luck with it – I hope it works for you!

Comment by Anna 01.28.09 @ 2:50 am

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