Filed under: Crohn's flare
Lady at Caremark got us to someone there trying to expedite–but: first they needed a new copy of the Rx. Can they explain that to me please? WHY? Dr R got immediately on it. Humira might come tomorrow.
Mom spooned food in so I wouldn’t barf it if I sat up. I love my mom.
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Here’s hoping for tomorrow.
Your mom’s a saint, too, by the way — clearly. She raised you. 🙂
Comment by Kristine 01.12.09 @ 12:01 pmHoops. Hopefully, that Rx was the last one!
I’m so glad your mom is there with you.
Comment by Channon 01.12.09 @ 12:01 pmyou are my first conversation with God in the morning and the last at night and a few times during the day — today will include speedy shipping in that conversation 😉
Comment by rho1640 01.12.09 @ 12:06 pmDear lord, Alison. Jasmin told me you were sick, but I didn’t even… wow. You aren’t sick, you’re a veteran of war. Hang in there; I’m praying for you and your strength, and that the New Guy will at least take steps to fix the healthcare system.
Comment by Tikabelle 01.12.09 @ 12:07 pmI don’t know your Mom but I love her, too!
Alison, hang in there. So many people love you and can’t wait for you to get better!
Comment by LynnM 01.12.09 @ 12:09 pmAlison, I’m getting all choked up reading the comments. I wish so much I could take some of your pain away for you.
I pray that God will expedite everything for you.
Comment by Joansie 01.12.09 @ 12:12 pmI agree with LynnM, I love your mom too. Stupid stupid people, so good that you have Dr.R
Praying it will arrive tomorrow!
Thank goodness for moms! You’ve got a whole lot of people praying and wishing you well. 🙂
Comment by AmyS 01.12.09 @ 1:05 pmOh, Alison. Much love, white light and everything coming your way. You are amazing. Totally amazing.
Comment by Romi 01.12.09 @ 1:08 pmUnbelievable. Just unbeliebale. Where’s it coming from? The North Pole? Are they sending it by dogsled? (maybe they should – it’d be there faster)
Hang on. It’ll be better soon.
Comment by Lene 01.12.09 @ 1:12 pmHang in there Alison. We’re all sending our best thoughts and energies. ::hugs::
Comment by Alicia 01.12.09 @ 1:18 pmOk, let’s hope this is the last of the delays and it gets to you tomorrow. Bless your mum, her heart must be breaking watching all of this and not being able to do anything. Prayers again.
Comment by Vicki 01.12.09 @ 1:31 pm“Mom spooned food in so I wouldn’t barf it if I sat up. I love my mom.”
Well, Alison, I couldn’t help but laugh. I spent a good part of yesterday cleaning up after my cat who has a, ahem, sensitive stomach. If I thought spoon-feeding would help, I would have done it.
You hang in there, girl. Being a bit selfish here – I’m choosing which “Wrapped in Comfort” shawl to make next. I’m sure I’ll need help and encouragement. Plus, isn’t there another book still needing to be written?
Comment by Linda W 01.12.09 @ 1:45 pmOh for heaven’s sake. Alison, you are being way too nice. Ok, you probably don’t have the energy to get really mad.
Little miss hormones over here is more than making up for it for you today. let me at em.
Hugs honey and yah for moms!
Comment by Tiny Tyrant 01.12.09 @ 1:45 pmToday I wore the beautiful shawl that you made me. Prayed and thought of you. You have so much love and kindness knitted into each of your lacy works of art. Hope it is multiplied and sent back to you by those you have touched. Keep the faith and rest my dear. So glad you have the comfort of your Mom 🙂
Bev
Comment by Bev 01.12.09 @ 2:03 pmContinued prayers being sent up for you Alison. BIG HUGS!
Comment by Lisa 01.12.09 @ 2:06 pmI’m in the group, Alison – I love your mom, too! I know God’s holding you now. I also know he’s hearing prayers in your name all day every day – So many voice sin prayer for one of his miracles. (That would be you in case you didn’t know!) Tomorrow’s GOT to be the day! Love and prayers…Debra
Comment by Debra 01.12.09 @ 2:14 pmLast night I said prayers with Will (my 5 year old in case anyone but Alison is reading this)… We always say the same “Now I lay me down to sleep…” prayer each night. Last night we added some words together about you. He asked why we were saying prayers for you. I explained that sometimes when people are very sick, they need help to say their prayers because they may be too sick to say them. He immediately crossed his hands and joined me in saying our prayer over again, ending it with “God, that was for Miss Alison”… My heart just swelled.
Thinking of you.
Comment by Amanda 01.12.09 @ 2:26 pmPraying for you and your family.
Lots and lots and lots.
We’ll see you blogging about your flowers soon I’m sure!
Hugs,
Nancy
Comment by Nancy 01.12.09 @ 2:26 pmI lay your petition before our God many times for you today. I know He will wrap you in His love and keep you. Hugs and prayers for you and your mom.
with care,
Pam
Comment by Pam Alexander 01.12.09 @ 2:27 pmIt sounds rather as though your mom loves you.
Comment by RobinM 01.12.09 @ 2:28 pmPrayers and hugs for you and your family!
Comment by Deb in CT 01.12.09 @ 2:51 pmApparently I’m joining the huge club of people who love your mom.:) And you too.
Comment by no-blog-rachel 01.12.09 @ 3:01 pmOMG, Alison, insurance companies suck. They are SO miserable to deal with. I can’t believe all you’re going through. Sending prayers and healthy vibes your way. ~~Liz
Comment by Liz Delisi 01.12.09 @ 3:17 pmI wore your shawl today too….
Comment by afton 01.12.09 @ 3:33 pmGod made moms to do the hands on work . . . I’m glad your’s is there to do it for you.
Prayer works and the meds had better too. Keeping you and all your family in our prayers, that this will soon be over with and you’ll be comparing it to some other issue, or sharing what you learned from it.
Hugs, Shelly
Comment by Shelly H 01.12.09 @ 3:47 pmDear Alison,
Barbara Collins told our DRU group about your dilemma with Caremark’s lack of care (pun intended). I also have them. If there is anything I can do on your behalf please allow me to help.
Your designs have given me lots of pleasure.
Warm regards,
Shelley
In SE NY
Dear Allison, a friend told me about your condition today. Have you heard about ()? I believe you have what he has. He’s well after doing all of the MD stuff and almost dying… down to just skin and bones… he was at the end of his rope when he came to someone in So. Cal., a doctor who helped him to be able to eat again. Check out his story. I don’t know much about what you are going through or what he went through but I felt I had to share this with you. I hope PRAY you will be feeling well again in no time. We will all be praying for you. I just shared your info with my group of lace knitters all 600 strong will be praying for you and thinking on you. Please get well and strong again. Blessings! Wendy
Answer: thank you, Wendy. But I am with much apology going to edit your comment here. That fellow was on a level of prednisone that induces paranoia in some patients, and he believed his doctors had given up on him. I can tell you from experience they wouldn’t have sent him home from the hospital before he was ready without a PCC line for further IV feeding by a home health care nurse as necessary–I do believe his perception was skewed by the prednisone. There is a medical disorder that causes some people to eat dirt; he credits doing so with his remission. And he now sells his dirt for other patients to ingest. I strongly feel he damages those patients, and I just can’t let my blog be the means of his business getting more publicity, so forgive me, but I am deleting his name and link. Thank you for your understanding.
–Alison
Comment by Wendy McDonnell 01.12.09 @ 3:58 pmYay for your mom! I am so glad she’s there. I think your anger has helped you pull through this, somehow. When you are better, you need to totally go after your insurance company. Yeah, one way they can save costs is to neglect the patients until they die… That’s one way.
(Sarc).
All that you have gone through with that bureaucracy makes me just shudder to think how much worse it will be when the government takes over our healthcare. God help us all, then…
I wonder why B/C didn’t honor a doctors request for a life-or-death medicine for a patient? Do dr.s have to carry a drug store in their black bags these days? What a shameless malpractice this is by Blue Cross.
… still, the bottom line is that God loves you and your family, and has kept you through all the bungling. He still has things for you to do before He takes you home. I’ve asked for mercy every day for you. Can’t wait to hear that you have turned the corner on this!
Forecast high temp for Madison tomorrow: 3°F with wind chills of -20°F, because I have sent all of the warmth to you and your Mom. You need it more than we do.
Praying that you are awakened tomorrow morning by the deliveryman.
Comment by Linda L. in WI 01.12.09 @ 4:06 pmPraying for you in snowy, cold Nova Scotia.
~Lori
Fingers crossed they get the med soonest! As for the new script, maybe it’s because of the expediting? Instead of hunting up the original one? Although I can’t imagine Humira ever being a NON-expedited med. Anyhoo, I’m pulling for ya!
Comment by Carol 01.12.09 @ 4:35 pmI got a reply from caremark today, saying that they are unable to locate my records and would I be able to send them?
All I did was tell them how I felt re: treating you the way they are.
Your mom is so wonderful.
Here’s hoping that those meds are there SOON! Stat.
Comment by karin 01.12.09 @ 4:55 pmBlessing to you. I sincerely wish you well in your battle against Crohn’s and Caremark. Neither should be.
Comment by Mady 01.12.09 @ 5:22 pmAlison you are breaking my heart. It’s so hard to see suh a vibrant soul quieted. May the Lord bless you and your family during this trial.
Comment by Dariece 01.12.09 @ 6:11 pmStill praying.
Comment by Kit 01.12.09 @ 6:21 pmAlison, I love your mom, too. (I already loved you, no change there.) Must be comforting to both of you that she is there.
It seems the entire Internet knitting community is on needles and pins on your behalf. Glad your doc is so on it; hoping Caremark gets its act together and now.
Sending stronger healing vibes every minute.
Lynndy
Comment by LynnH 01.12.09 @ 6:30 pmWould 1 pen help? I’m also on Humira and I’m not having an attack. I could spot you one if it would help. Then, maybe when you get yours you could send one back. Let me know.
I love your writing and it breaks my heart hearing about you. Be strong! I’m praying with you!
PS: I get my Humira from US Bio Services, mailed to my door. Always courtious, always punctual.
888-518-7246.
I will take my Alison shawl to the hospital with me tomorrow while waiting for my daughter’s surgery.
Comment by Sherry in Idaho 01.12.09 @ 7:15 pmHi, Alison,
I’m here again, today, just to say hello and send my love. As my Southern friends would say, I’ve been “much in prayer about you”. I thank God that he has brought us to this evening, and look forward to tomorrow.
Loving you and praying for you.
Comment by Laura 01.12.09 @ 7:58 pmHang in there Allison. With all of us praying and rallying around you, Caremark has no idea how much of a PR nightmare they have created for themselves. Keep the faith and keep getting strong.
Comment by jackie shapiro 01.12.09 @ 8:04 pmHi Alison,
I got the message on KnitTalk that you were ill. I will say prayers for you at home and at temple. If I could, I would send you the drug you need but I don’t think they sell them on the streets of the Bronx near my school. (A little humor!) I will be reading your blog daily to see how you’re doing. Just know that someone in Yorktown Heights is thinking of you!
oh sweetie, i hope that you are soon on the mend. sending cyber hugs and real prayers.
Comment by marti 01.12.09 @ 9:03 pmLeave a comment
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