Friday October 13th 2023, 10:08 pm
Filed under: Family,Food,Lupus

Spoon Theory is the most brilliant description I’ve ever come across of what it’s like to live with chronic illness.

That said, it’s not an analogy I’ve needed to use in awhile. I still have lupus, but the fatigue is not what it was and the pain is mostly gone from me.

It was possibly wildfire smoke that caused my shortness of breath and got me in the cardiologist’s office July 18; this afternoon I finally had the stress EKG test for it.┬áCovid has created many many new cardiology patients, the office is swamped, and I just didn’t seem to be an emergency. But he did want to follow up on that.

I made pumpkin almond muffins in the morning. Comfort food. Healthy. Ready.

The rare drycleaning order had to be picked up after 4:00. My daughter needed a package mailed to her. The post office was in the direction of the dry cleaner, oh, and I had to go to the grocery store afterwards because you can’t have the food sitting in the car.

Heart ultrasound, race uphill with your wires as fast as you can as long as you can hold out and then more ultrasound, while remembering the doctor’s surprise last time–he didn’t think I could do it anywhere near that long but I did so I was determined to do it again. I came a half minute short. I can live with that.

Got through rush hour, got to the post office, hoped the ultrasound gel I could feel (oops) didn’t show through my shirt, fought more traffic, got to the dry cleaner, dashed into the Safeway, got some groceries including some throw it in the oven and call it done for dinner, made it home.

Man. Spoons? More like that silverware drawer got ripped right off its rollers and out of the cabinet, flipped, and dumped on the floor with a crash.

Go eat a pumpkin muffin, Richard said, looking at my face as I walked in the door.

Dinner and time and rest and now I’m only having to remember how utterly wiped I felt: while so grateful that it’s not like that all day every day these days, not even any day, usually.

It was, once.

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Spoon theory also describes old age. And hypoglycemia really complicates things. Fortunately the sugar problem doesn’t hurt–it just makes you fall down, and mine gives me enough warning that I can take a tablet and replace a spoon. Mom

Comment by Frances Jeppson 10.14.23 @ 10:15 am

I was just thinking of spoons the other day! I find it great shorthand for figuring out what I do and don’t have the energy for (physical and mental energy). Sometimes it would make sense to do B and C when I’m nearby doing A, but if I can’t, I can’t.

Comment by ccr in MA 10.15.23 @ 12:40 pm

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