Don’t let the phase faze
Monday May 17th 2021, 10:52 pm
Filed under: Crohn's flare,Family,Life,Lupus

Last night changing out of my long sleeves into my pj’s I noticed the veins in my hands and arms were very swollen, deep blue, and you could see them going from my hands wrapping around my arms on up to near the elbows. Puffy. I checked around. It seemed to be mostly there.

“That’s inflamed,” said Richard, with both of us aware that my lupus did this all over early on in the disease and the doctor guessed afterwards that I’d had cerebral vasculitis. That’s where my face blindness and short term memory damage originated from. I was 31.

Urgent Care was closed by then and he asked whether we should go to the ER. Insurance punishes you heavily if you go straight there ($13k bill last time), even when the doctor tells you to. We knew we would spend a very long night awake and go home near dawn beyond exhausted, which would greatly exacerbate the whole autoimmune flare thing, and chances are they would probably just dismiss it anyway; at an hour when all we wanted to do was fall into bed it seemed like the best way to treat it was to get a decent night’s sleep.

I was antsy and didn’t sleep well at all. But it was gone in the morning. Breathe.

My GI doctor said I could see her next Monday or come in and see someone else if I needed to on those Crohn’s symptoms; again, my call.

Today was not perfect but it was improved on that one, too, and I was able to eat normal meals, so for the moment Monday it is. But I will change that in a heartbeat if I need to.

So today there were more birds in the yard than I’ve seen in awhile. House finches in breeding season: you never saw such a brilliant red. A western tanager flew up close to  the house, the jasmine’s white buds promise their exquisite scent on the way, the pomegranate sent out more bright red buds, and we shared a few blueberries straight off the bush after dinner. The newest apricot seedling began a new set of leaves and after its faltering start seems to really be taking off.

It felt a good day to drink every bit of that in.

I’m going to go top the day off with a few rows of a bright blue soft wool hat and then call it a night.

6 Comments so far
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Yeesh. I’m glad things are improving, but take it easy.

Comment by ccr in MA 05.18.21 @ 6:23 am

So very happy for you that you’re feeling better and the vein inflammation has subsided. And a beautiful bonus from the wildlife.

Comment by DebbieR 05.18.21 @ 6:39 am

Nature has a way of making everything else seem trivial. Take care.

Comment by Jayleen Hatmaker 05.18.21 @ 7:22 am

I’m sure appreciating those birds had a positive effect on your physical health, not just your mental health. I hope that trend continues!

Comment by twinsetellen 05.18.21 @ 8:21 am

I have always been lucky with my health (touch wood) although aging is throwing a few things at me.

You deal with everything with such grace. Grace often escapes me unless I really focus on it. I think I would like to be more like you when I grow up.

We don’t have fruit yet – but the asparagus is here!!! And rhubarb very soon !!!

Comment by Chris+S+in+Canada 05.18.21 @ 9:54 am

I am seeing a few males house finches with the beautiful red and today had a pair of western bluebirds–not the wonderful mountain bluebirds but I treasure these anyway..

Comment by Sharon Stanger 05.18.21 @ 8:09 pm

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