Rheum in the in
Wednesday December 12th 2012, 12:38 am
Filed under: Friends,Life,Lupus,Warm Hats Not Hot Heads

I had ignored the reminder message for quite some time:  the rheumatologist likes to keep semi-annual tabs on me whether I like it or not.

Don, do you remember from the pool… I will forever remember what a woman there I had always thought of only in terms of being a very sweet, kind old lady once related to me. She had long been severely disabled by juvenile rheumatoid arthritis. She had gone in to see her rheumatologist after a long absence and he’d demanded of her, “Where have you been?!”

She retorted sharply, “What have you  learned?” If he couldn’t do anything new, there was too much life to live to bother with being reminded again and again of what she couldn’t do, so, hey.

As a newly-diagnosed lupus patient at the time with Crohn’s soon to come, doctors aside, she taught me a valuable way to look at this chronic stuff. Just go live!

I should add that in the 24 years since then, the medical field has learned a lot about her JRA, actually.

Well anyway.

So I went in today. And asked the doctor how he was doing.



He told me he was now coaching his daughter’s basketball team.


He was pleased with how pleased I was with that, so he asked after my grandson and then asked if I were doing any writing; somehow that became an opening for me to tell him about the Warm Hats Not Hot Heads project (which I totally mangled the name of, trying to spit it out, giving him an on-the-spot example of lupus brain fog) and how we knitters had knit a hat for each member of the Senate and a goodly percentage of the House; I gave him my line about “to tell them to put a lid on it,” not the most, um, diplomatic way to describe it, and he laughed and added, “And get to work?”

“Yes!” My turn to laugh.

So we didn’t come up with any magical cures today. But I came away feeling heard about the medical stuff that I honestly didn’t particularly want to talk about because we had heard each other out on a few of the important things near and dear to our hearts. Which made the rest easier to discuss. (Stupid chest pains. He looked up the cardiologist’s notes and reassured me. The cardiac cough is in remission, always a good thing.)

Okay, then.  I’ll see him again in six months.

4 Comments so far
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I’m glad to hear you got a good report

(and I do understand the conversing about other things — hate having the whole discussion with the doctor be just about my problems!)

Comment by bev 12.12.12 @ 10:00 am

Of course I remember! The CAR pool,that day in late November, 2009, when you saw me at Trader Joe’s, your lovely daughter, the card you handed me, my looking up your blog the following day and finding the whole story there!

Good to hear the good news from your doctor. I go to a number of health care providers on varying schedules. Gets me out of the house.

Comment by Don Meyer 12.12.12 @ 10:40 am

Very happy for you that the cough is in remission and you are doing well. Sounds like you have a great doctor. And I think you are a great teacher of the “live your life” lesson!

Comment by DebbieR 12.12.12 @ 11:16 am

Conversations with doctors are so important. One of my doctors ignored the results of an important test. Eventually the situation became untenable even though she was an amazing doctor in many ways.

Now that I’ve stopped going to her, I just keep telling myself over and over that I’ll never let anyone tell me I can do more than I know I can do evah again.

Comment by RobinM 12.12.12 @ 1:57 pm

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