Really bad day.
No Humira.
Finally at least got hair brushed. Pecking letters on laptop lying down.
53 Comments so far
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I just saw yesterday’s post. I am so very, very sorry. I know only a shadow of what you’re going through, and know that I will pray for you tonight and light a candle for you at church tomorrow.
Comment by Carina 01.10.09 @ 6:53 pmSending healing thoughts your way. I considered sending a hex to the insurance, but although that would be satisfying, I doubt it would expedite the processing of your claim. Instead, I will think eye-opening-compassion thoughts at them.
Comment by ccr in MA 01.10.09 @ 6:56 pmAll evening I am sitting here, refreshing the page for news.
I am stunned and in great disbelief that they are doing this to you.
You are a very very brave woman, documenting it the way you are. We are here, witnessing what is happening.
I see you have filed this under “knit”…you are knitting us together. We are all standing around you in one big circle, praying and lifting you up.
My amaryllis has all four flowers open now, they opened every couple of days, and the first one is still there, too, all four of them in perfect balance together. I am reminded of your four beautiful children, each separate, but coming from the same “plant”.
Compassion towards Caremark is very difficult, I do not understand them…but I’m trying. I know you’d want us to.
Comment by karin 01.10.09 @ 7:04 pmDid you change the Filed Under while I was typing?
No matter…
Sending love and strength.
Comment by karin 01.10.09 @ 7:06 pmAlison, I am dreadfully behind on my blog reading so I am reading your last several posts in disbelief. I am so sorry this is happening to you. I pray that you will get your meds and your body will respond to them quickly and allow you to feel better. I hope you are shown as much compassion and love as you show others every day. You definitely deserve to be treated wonderfully, because of the wonderful person you are. *Hugs*
Comment by Lisa 01.10.09 @ 7:12 pmOh sweetie. Sending love and healing thoughts your way.
Comment by no-blog-rachel 01.10.09 @ 7:23 pmHANG ON, Alison!
Comment by Bonnie 01.10.09 @ 7:24 pmAlison, Karin alerted me to your blog and asked for prayers for you. I am certainly doing that now and I will also forward your blog to my daughter who will ask for prayers from her congregation in addition to her own. Thoughts of strength and comfort are coming your way. A prayer that has helped me remember I’m not alone…
May the Light of God surround you,
The Love of God enfold you,
The Power of God protect you,
And the Presence of God watch over you.
Keep pecking sweetie! It is selfish but we need to know that your spark is still there, so we can all blow on it with our prayers and make it blossom up stronger and stronger.
Let Mom brush your hair and let every stroke add to that spark.
Sending loving strength and prayers. HANG IN THERE!
Gentle Love & Hugs,
Gretchen
Knowing that God is All, I rest in the Presence and Peace of It. Breathing in, breathing out. The ongoing, continuous Flow of Life, in all of its forms, continues. For this, I am grateful. Thank you, God, for Alison. Thank you for her strength, her Beauty, her Love, her laughter, for her Life. Thank you, God, for her vitality, the Harmony of her Being, and the healing force that she is. Knowing that God is always present, I know that she is surrounded with Love and Peace. And so it is. Amen.
Comment by Linda W 01.10.09 @ 7:44 pmAlison, all I can say is, Wow, you are so much stronger than I would be. I know you have a lot of support with you (yay, mom, for extra help) but most of it comes from within you. I hope you can feel it from “out here” — all of us sending you healing thoughts and prayers.
Comment by sjanova 01.10.09 @ 7:51 pmI’m still praying, Alison, and so are my friends and family. We’re all holding you up to God in love and hope.
Comment by Pegi 01.10.09 @ 7:56 pmI just started my Alison shawl today. Each stitch is a prayer for you. I am grateful to God for having you in my life.
Comment by Sherry in Idaho 01.10.09 @ 8:05 pmOh honey.
Hang in there. We are all rooting for you. And oh my gosh is Caremark getting some nasty grams on their site right now.
Comment by Tiny Tyrant 01.10.09 @ 8:08 pmHold on, love. Just hold on until Monday morning when your doctor can whip some sense into these people. Is there anything we can do? Take up a collection to buy you some Humira, just as a buffer until the insurance company gets its act together? We could all give a little and maybe it’d be enough?
Please hold on. We need you.
Comment by Lene 01.10.09 @ 8:08 pmWould it help if we all emailed Caremark and yelled at them? (I just went by their site and barely managed to walk away without sending invective at them. Or begging. Whatever would get them off their behind).
Instead, I will send you all my love and strength.
p.s. but if you think us petitioning them would help, just say the word. or get Richard to say the word and we’ll do it.
Comment by Lene 01.10.09 @ 8:13 pmI’m not feeling nice enough right now to object if you tell them what you think.
Comment by AlisonH 01.10.09 @ 8:32 pmGod will take care of you. Keep the faith and try to hold on.
Comment by Leslie 01.10.09 @ 8:39 pmDone. I was nice. Ish, anyway.
For anyone else who wants to contact Caremark on Alison’s behalf, go here https://www.caremark.com/wps/portal/!ut/p/kcxml/04_Sj9SPykssy0xPLMnMz0vM0Y_QjzKLN4j3CwbJgFjGpvqRqCKOcAFfj_zcVKBwpDmQb2jprx-iH6TvrR-gX5AbGlFunO4IABY6-9k!/delta/base64xml/L3dJdyEvd0ZNQUFzQUsvNElVRS82XzBfMUkx
Comment by Lene 01.10.09 @ 9:04 pmOne lady, who recovered from cancer, was asked what she attributed her recovery to. “God was tired of hearing my name” she answered, referring to the many friends who prayed for her daily.
Now, when I begin “Dear Father,” He must be thinking “Yes, I know, it’s about Alison…”
Comment by Barbara-Kay 01.10.09 @ 9:19 pmYes, I’d definitely contribute to a collection, just say the word and where. hugs and prayers and love.
Comment by marianne 01.10.09 @ 9:29 pmAlison,
I don’t really know you and yesterday was the first day I stopped by your blog. Karin had posted a note to the Yarn Harlot. I saw her plea and googled you to refresh my memory, as your name was familiar. I have loved reading your comments on Stephanie’s blog and seeing your beautiful works.
Now that I am up to speed about your situation, I have said several prayers and begun visiting your blog for news all day, as have others. You are in the hearts and prayers of so many, I know things will work out for you soon. Stay strong, as hard as that is, and know we are here, those who know and love you and those, like me, who came to lend a hand, ear, shoulder and positive vibe. Whatever you need, we are here.
Hugs,
Cathy (I post as Cathy in Cleveland on the Harlot’s site – I have no blog)
I am thinking of you everyday Alison and praying for some relief. I sent an email to Caremark (that’s an oxymoron). Hopefully, if they get a lot of them someone will take notice.
Comment by rebecca jc 01.10.09 @ 9:44 pmI love you. Feel the love and the caring/loving energy, sweetie.
Powerlessness sucks. Feel the love. I so wish I could fix this. For now, love is what I’ve got.
Lynnie
Comment by LynnH 01.10.09 @ 10:07 pmwhat lene said – I could contribute some to the fund for sure …
And — come on Caremark — on their front page they will give discounts for Fertility Drugs but they can’t do it for something that will help you LIVE!!!! And I am not being mean to people who need Fertility drugs We weren’t able to have kids I know that feeling…..
Oh and I hope we can make what Barbara-Kay said be true for you too…
hang in there sweetie…. love and gentle hugs
Comment by rho1640 01.10.09 @ 10:24 pmAlison, continue to be strong, I know you can do it. I will keep praying for you and all involved. You are loved more than you will ever know.
Comment by sonya 01.10.09 @ 10:32 pmI wrote to Caremark too. I was polite. But oh! Let it help! I wish there was more I could do besides pray and send love and strength. Take my blood! Take my T-cells! Whatever! Hang in there sweetie!!!
Love & gentle hugs,
Gretchen
Hugs and love and prayers from us to everyone around you. I hope that we still see the dawn at the end of this long dark night.
Comment by Kristine 01.10.09 @ 10:47 pmLove ya, sis. Hang in there. I’ve got the girls praying for you each night.
Comment by morgan 01.10.09 @ 10:59 pmHugs, blessings & prayers speeding your way! Hang on, Alison…we’re all pulling for you!
Candy
Comment by Candy 01.10.09 @ 11:09 pmAllison, I asked a few colleagues what could be done and I feel that is Caremark is being jerks then you really do have to fight back. So here is it is:
“first, she needs to find a lawyer to review her health insurance contract; next, contact the CA Health Department, the CA Insurance Department and the press about her plight. She will also have to determine if Humira an “off label” for tx of Crohn’s; if so, she may have issues there b/c the FDA/ins co/MDs consider off label as “experimental”. That is a dirty word in health care, experimental many times equals excluded from coverage as the treatment is just not proven.” Wish I could do more.I’ll keep the brain cells turning.
Jackie
Like Gretchen, I was polite, too. I mentioned to customer care that the bureaucracy in the system appears to be holding up your prescription and perhaps some caring individual could get it expedited.
Barbara-Kay, you made me laugh, but Alison, I wouldn’t rule out JackieS’s suggestion.
Comment by LynnM 01.11.09 @ 1:06 amThinking about you. Praying for you. Remembering our nice visit in Vermont just a couple short months ago, and thinking about how great it will be to see you there again at your next visit.
Hang in there, there is still so much hope. Even if your shoulders cannot carry the weight of that hope right now, all of us will hold it around you like a cocoon.
Only a few more hours until Monday.
Comment by Amanda 01.11.09 @ 5:45 amContinue to be strong, Alison. The power of prayer is stronger than Caremark. I’m sending you my love and prayers that Monday, pronto Monday, will be the day to the start of a better life with Humira.
Comment by Joansie 01.11.09 @ 6:20 amEven if you aren’t up to reading the comments, the shear mass of them lets you know you are loved, and you have a host of friends praying for you.
Hang in there.
Comment by Channon 01.11.09 @ 6:28 amSending lots of healing thoughts your way!!!! And “Get a clue” thoughts to the insurance industry!!!!!
Comment by Toni 01.11.09 @ 7:34 amI wrote to caremark last night, too.
The question I have is, can’t you be admitted, and they give it to you in the hospital?
This whole thing is so screwed up.
I am praying with my whole being.
Comment by karin 01.11.09 @ 8:20 amI got some pain-relief patches from an unsuspecting pharmacist once. It had gone bad, and almost killed me. The pharmacist gave me yhe makers number, and I was fortinate–I was put through to a lady that was not only a resercher-scientist, she was a powerhouse insales and marketing, too. She saw to it that the responsible person for letting it be sold past it’s safty date, I got a free month’s supply. Sometimes it’s a matter of getting ahold of the right person. ditto all the love and prayers from so many.
Comment by carol weiss 01.11.09 @ 8:31 amI also emailed Caremark Alison. karin might be on the right track. Can’t you be admitted?
Hugs and much love,
Nancy
Comment by Nancy 01.11.09 @ 9:46 amOh, Alison! I am sending you the biggest hug my friend. Lots of love and lots of prayer for you. Hang in there, we are all holding you up.
Comment by Lynda Sorenson 01.11.09 @ 9:50 amAlison, I am so glad to have been able to stop by on Friday and give you a hug — think of it as a hug from all of your loving friends. They are all praying for you and hoping the best and to get that medicine VERY SOON.
Lots of hugs and love, Nancy
Alison: My prayers continue to be for your strength and return to good health. You are loved by your family and friends and their love support and prayers will bring you back to good health. Stay as strong and possitive as you can for I feel help is on the way. Hugs Bonnie
Comment by Bonnie 01.11.09 @ 10:01 amI am so sorry I havent beem keeping up with blogs as well as I should be. I wish I could do more than say that Brian and I are thinking of you daily and praying for your wellbeing.
I would write to Caremark as well however I dont think my letter would be polite (I have dealt with the beauricracy myself and it angers me to much)and the letter I would write wouldnt do anyone any good.
You are stonger than anyone I know my friend and will overcome this crisis and any others that come your way. You are surrounded by love and prayers.
Dani
I haven’t seen you in quite a while, but I’ve been thinking of you, and now I read that you are so dreadfully sick. Alison, my best wishes are with you, and that you start feeling better today. Now! This very second! Your friend, Diana
Comment by Diana Petersen 01.11.09 @ 10:23 amI am too very sorry you have to live through all of this – you and all your family. I know prayers can do a lot when there is no physical help we can bring, so know that I pray for you – all the way from cold Montreal.
I will agree with someone else who mentionned your strength: it is a definitely an example to follow.
Take great care of yourself, or as best you can under these circumstances!
Suzanne
Comment by Suzanne 01.11.09 @ 10:24 amI sent a message to Caremark. It seems the one thing I can do, besides sending love vibes.
Lynndy
Comment by LynnH 01.11.09 @ 10:38 amOh, Alison, I’m so sorry to hear how much you have gone through. Sending healing thoughts to you and clue-pack vibes to Caremark. My sister has Crohn’s, too, so I’ve seen a little of it first-hand.
Comment by Kathleen 01.11.09 @ 11:03 amAlison, you are in my thoughts and prayers. I wish that there was more that I could do.
Comment by sunflowerfairy 01.11.09 @ 12:20 pmDear Alison,
Karin & Betsy just posted on Knit talk. You inspire me to Alison others so I have a line-up of thank-you cards on my kitchen windowsill. That means I think of you every time I look at them, so even though I didn’t know about the recent events, my thoughts were with you.
Hugs,
Izzy
Comment by Izzy 01.11.09 @ 4:32 pmLeave a comment
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