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One dedicated person in the right place

If you know anybody with Chronic Fatigue Syndrome, this is huge: a well-respected Stanford bioresearcher (San Jose Mercury News link), one of those who worked on the Human Genome Project, has a previously world-traveling son with a severe CFS case and was appalled at the lack of knowledge, funding, or interest in it, not to mention the fact that many patients are told it’s all in their heads.

His son is fed via tubes, in bed, and unable to speak.

I have no doubt that the dad’s reputation and previous work helped him land the funding he did. The result is a test that so far has identified every one of the severe cases tested (two year old Stanford link–there were 50 more patients affirmed last year by it) and ruled out every healthy control volunteer. It is finally a verifiable, quantifiable thing.

And now he’s applying what he’s learned to studying covid long-hauler syndrome.

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