What the Humira did for me was to stop the endless, intense nausea that had me on two meds for it and asking for more as a dose would wear off. It’s gone. That alone was worth the Humira yesterday.
What has been amazing to everybody all along is how very little pain I’ve been in, given the state of that colon. They press on my abdomen, going, Does that hurt? And almost always the answer is no. (With me gleefully thinking, and I know whyyyyy…. Prayers. All those prayers.) Every now and then a twinge, but given what’s going on! One doctor even told us that it is noted in my chart, “Patient looks deceptively well” as a warning to the team not to dismiss the seriousness of it all.
After a discussion with various doctors and my Dr. R in particular today, the decision is made. Surgery. I can’t wait. The thing will have an end. Since I have never had any sign of any Crohn’s anywhere else, I won’t have to be on immunosuppressants anymore. Dr. R feels it will essentially cure me.
And THAT is a miracle!
(Ed. to clarify: my particular Crohn’s has always been caused by LE cells from my lupus. I’m not a typical case. Those LE cells never showed up anywhere else that Crohn’s might.)