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And again and again

Today was the true spirit of holiday rush.

Remember that four-year 29% bone loss? (Yeah, steroid meds are fun.) I was scheduled to have my first yearly IV infusion of an osteoporosis drug this afternoon. They needed a morning sample from the lab beforehand, preferably same-day.

At the lab, I asked, wasn’t there supposed to be a blood draw too?

With the place packed and signs pleading for patience saying that they had a new computer system in place and it would likely take a few weeks for everyone to get up to speed with it, they looked me up and assured me no.

Well okay then. I stopped by the house afterwards and then I was going to the annual lupus group luncheon. I look forward to it all year. There are old friends who turn out for it that I never get to see otherwise, and I’ve missed it too many times from having germs–you do not bring contagion to an immuno-compromised group. I had RSVP’d, I was germ-free, and I was good to go.

The phone rang as I was walking for the door. The doctor’s office: I was indeed supposed to have had blood drawn, and it had to be at least an hour, preferably two before that IV, the sooner the better.

I. Am. Going. To. My. Luncheon. And I did: and our group got seated at the door, which kept being left open and I kept getting up and shutting it. Lupus. Sun.  Come on, folks, you know what group is here.

The manager, bless her, said to me that the whole restaurant was reserved and everybody was here and then she locked the door! And put a chair in front of it to try to get people from the other group to go out the far one or at least notice that a message was being conveyed. Go her!

I probably shouldn’t have ordered at all. My soup arrived, a little too hot to eat yet, less than five minutes before I really really had to bag it up and leave (but it was so good). We were supposed to be rung up as a group; they let me pay and go, glad to be able to help. Good folks there at Allied Arts.

But I was stressed out enough to trigger my cardiac cough. Back to the lab. Back home.

This IV was all something new and they told me I would feel like the flu for several days afterwards, maybe even a week. I had no idea how I would react. Richard wanted to come with me to be a support and just in case I wasn’t up to driving home, bless him. I offered him half my soup, still warm.

We arrived at the oncology clinic. The nurse clearly was used to people who weren’t used to IVs, and apologized at blowing a vein on the first try: my blood pressure was so low, it was hard to find a good enough one.

Eh. I knew there’s a world of difference between that and a vein that collapses after a couple days’ use in the hospital and screams at the saline they have to push through it; this was nothing, absolutely nothing. I assured her it was okay, and it took a few tries before she believed me that it really didn’t bother me, none of this stuff did.

Dem bones dem bones dem dry bones. An hour of sitting and quietly reading with no pressures to get anything else done in the moment. Enjoying the quiet.

I’m just glad there’s something they can do!

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