Good thing. Yesterday evening I’d been back to serious pain, holding my stomach to be able to walk down the hall. Took the pred, went to bed… And although I was quickly wired to the max, the pain, I suddenly realized, was almost gone.
It was absolutely stunning. Pred has never touched my Crohn’s, ever, at any dose. They had me on 200 mg/day via IV in the hospital, and, nada.
I had a longstanding appointment anyway with my surgeon for right after the CT scan, and she was delighted. “Different body parts sometimes respond differently to the same med, and you’ve only ever had Crohn’s in your colon before.”
She thought she saw a Crohn’s spot on the small intestine in the scan; the radiologist’s preliminary report didn’t think so or didn’t catch it. Two pairs of eyes is a good thing. We’ll see how that settles out; as the surgeon cautioned, “I’m not a radiologist.” (Ed. to add: they talked, the radiologist went carefully over it again, and said no, it was normal. There is another test that could be run, but Dr. R will have to order it when he gets back.)
But there is now a definitely-maybe hope of being successfully treated. I can’t tell you how good that feels. It’s not gone, but I’ll take all the improvement I can get.
Oh, and, I tried to knit my Monterey shawl during the long wait between the half dozen large paper cups of dye I had to drink and the actual scan, I really tried. But benedryl and no sleep and a complex pattern–I got about a dozen stitches into a row, shook my head at a mistake, couldn’t see what I’d done for the life of me–that’s when you know I’m drugged out–and tinked back to the beginning and stuffed it back in my knitting bag. I had carefully packed a spare ball of yarn and needles just in case, picked it up, and launched into a scarf in the Michelle shawl lace pattern. Something utterly brainless, silk and merino comfort knitting to comfort someone else by. So many people have knitted for me lately. Time to get back to work on giving back.