I started to answer Anonymous’s question in the comments, and it got so long I think I’ll just move it here. I do not remember who made my first pair of hearing aids: I got them just before my third child was born. I’d had two such soft-spoken little babies before, and then, my stars, that third one was LOUD! They do take awhile to get used to. Um, the aids, I mean.
My second pair was the latest and greatest at the time, 19 years ago, with adaptive compression to try to squeeze things down into my hearing range. Which meant that the higher the notes went in the music, the flatter they went, and everything was offkey, my brain fighting with the aids. I absolutely hated it. And there was nothing better out there to be had. I have perfect pitch, and was trained as a musician before my deafness advanced. You can imagine… I simply quit listening to music for years. Years. For such a wasted long time, till one day something simply snapped: I remember the moment vividly. I was playing Taxi Mom, sitting at the red light at Charleston and Alma with a carful of kids, and suddenly punched the radio on, to whatever station it might be set to, I had no idea, I’d never listened to it, I didn’t care. I needed music! Off key, on key, who cares, just deal with it, I’m a musician and I can’t live without music!
I think that happened because a dear friend had recently surprised me with the gift of some tapes of his compositions. How could I not put them in and enjoy them. I didn’t have them in the car, but I was in the car, and suddenly it all just came together–it was quite a dramatic moment for me. Rock on!!!
Later, Sonic Innovations, a new company, was developing their first hearing aids, and, having a friend on their Board of Directors (this being Silicon Valley), and knowing through him what they were working on, I kept bugging him to bug them to get them out on the market. I wanted some! They sampled from I think thirteen bands of sound whereas my old ones did from three. Rather against my audiologist’s advice, I had him order me a pair immediately after they became available, even though they were only making moderate-loss ones at the time. The sound was so crystal clear, so perfectly pitched, that they actually sounded louder than my old ones, even though they were actually 13 dB less.
But I really did need more oomph, even so, and when, after another four or five years, they came out with a severe-loss version, I got a pair. At 8000 Hz, my hearing loss is 110 and 120 dB. And they, for the first time, gave me hearing at that 8000 Hz. It was absolutely mindblowing. I could walk outside and hear all these birds I couldn’t see–where on earth were they? Man, you guys live in a noisy world! …I remember being woken up by the birds in the woods immediately behind the house, growing up… I was totally in love.
But that first miserable pair of in-the-ears aids from 22 years ago fed back all the time, and when we moved to California I asked my new audiologist, John Miles, (who was quoted in Newsweek recently, go, John!) if that could damage my hearing. He kind of went, huh, nobody’s ever asked me that before. He dropped everything and took my audiograms, new and old, over to Stanford University and asked around. They said, yes, there hasn’t been a lot of research in the past, but we’re doing some now, and yes, hearing aid feedback can cause further loss, and yes, your patient is a classic case. Fifteen more dB gone from that at this and this frequency.
Great.
So. I got the adaptive compression ones I used for so long. Fast forward to my new louder Sonic Innovations aids, which did not have the feedback suppression they should have; I’m assuming that was due to patent/licensing issues with older companies. I finally had to, with great regret, hand them back to my audiologist, because they were feeding back, they weren’t worth the risk, and my husband was beginning to tell me I was getting deafer again. I replaced them with a pair from Oticon. The Oticons are safer for me. They have lots of bells and whistles. I can actually, for the first time in my hearing-aided life, use things with earphones; they can plug into them. (Wow, movies on airplanes are suddenly an option!) They’re very nice. But they are not quite entirely musically perfect, and oh, do I miss my Sonic Innovations: and if they ever do come out with much better feedback suppression, the very first thing I would do with my very first royalty check from Martingale would be to blow the bucks on a new pair.
John Miles once mentioned to me that severe-loss hearing aids are only a very tiny, tiny part of the market. My pair of Oticons cost $5400. On the other hand, that price tag is what it costs to feel like a participating member of the human race when I’m around other people, and to say they were worth every penny doesn’t begin to describe it. I’m grateful to have them.
Now, when you all see me at Stitches, it’s really really noisy there; make sure I can see your face when you talk to me…